hey there hexbear nd gang! it's that time of year for the first time ever!

here we are once again approaching the end of the year according to the roman imperial calendar that we all have to use for some reason. it's the winter holiday season in the global north, a time of great symbolic significance to many people.

and so, i want to solicit your thoughts about this community, what it means to you, how you'd like to see it evolve, changes in moderation policy, suggestions for thumbnail and banner images, or anything else related to the comm or neurodiversity in general.

or just come hang out!

i also want to invite applications for new moderators for this comm. what would you like to do as a moderator for c/neurodiversity?

personally i've largely been a placeholder, but i do love this community and i want to see it grow as a shared and safe space for our neurodivergent comrades to talk about ourselves and with each other. i also want to do better and want your input about what that means.

c/nd has a well behaved user base so we don't need extra mod help for enforcement or anything like that. what i'm mainly looking for is fresh perspectives on community engagement and growth.

there is absolutely no requirement to disclose any personal information about yourself, just to make that clear. but if you're interested in moderating this community, please contact @CARCOSA@hexbear.net, myself, and/or the other nd mods with an application.

if deadlines help motivate you, you have 3 days from the time you read this.

if deadlines harm your motivation, don't worry about it. if an application comes in a month or two from now of course we'll still consider it. this isn't a job, i'm just asking for volunteers to help moderate a small internet message board.

Application

What is your Hexbear username?

Do you have any preferred pronouns?

What are your thoughts on capitalism?

What are your thoughts on imperialism?

What are your thoughts on trans rights?

What are your thoughts on racial justice?

What are your thoughts on neurodiversity?

What do think about current and previous protests around the world?

What are your thoughts on Veganism and Animal Liberation?

Do you have any experience with other leftist online communities? What did those experiences teach you?

What is your approach to moderation, and how do you work with teams?

How do you deal with online drama and people who try to start things for the sake of it?

Do you have any ideas for c/neurodiveristy community engagement?

What is your general time availability? (amounts, common browsing times, etc)

Element information

Element is a messaging app that lets you talk to people over the Matrix protocol.

To get started, check out this link, where you can choose to either download Element for your platform or, if on a computer, open it in a browser ("Launch Element Web").

The instructions that follow are for the desktop application and the web application, but the process is similar on all apps:

  • Press "Create Account"
  • We host our own Matrix server, so if you want you can change matrix.org to chapo.chat. This is completely optional; users who sign up with a matrix.org username can still talk to people with chapo.chat username. (Note: It is chapo.chat, not hexbear.net. Also, registrations aren't always open on chapo.chat; if they're not, just create an account on matrix.org)
  • Fill in a username and password
  • Hit register, and you're done!

top 50 comments

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[–] 46 points 2 years ago (3 children)

what would you like to do as a moderator for c/neurodiversity?

i would first permanently ban everyone who isnt gay

then i would ban everyone who is gay

then i would ban myself

thank you for coming to my tedx talk

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  • [+] 26 points 2 years ago* (last edited 2 years ago)
    [–] 26 points 2 years ago* (4 children)

    listening to remain in light for the 56th time and i have never felt more seen by an album. the way the music jumps around, the lyrics, the way david byrne sings. it all is just perfectly designed for my brain to latch onto and not let go

    idk if this is neurodivergent but david byrne is autistic and other autistic people seem to get it while the neurotypical people i've recommended it to are mostly kind of put off by it. it's a well respected album though so that's probably outliers

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    [–] 23 points 2 years ago

    I just want to get done with studying, pass these exams, get a job (I don't really want this one), get a car (don't really want this one either), and start dating again. It's all taking too long and I'm antsy as fuck about it. I'm 31 y'all. Don't drink alcohol to handle social situations, it's not worth it.

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  • [–] 21 points 2 years ago

    Frankly, this community has been so damn important to me. It’s literally the only place Incan go to feel somewhat understood/not mocked or told I’m overreacting. I’m incredibly thankful that I found it and seriously cannot express my gratitude enough 🥹 I can only hope to find some people like y’all irl ❤️

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  • [–] 21 points 2 years ago (49 children)

    Hey everyone! Anyone have any good new years resolutions?

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  • [+] 17 points 2 years ago* (last edited 2 years ago) (14 children)
  • [–] [S] 9 points 2 years ago (11 children)

    apply to gradschool

    for theater?

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  • [+] 15 points 2 years ago* (last edited 2 years ago) (10 children)
  • [–] [S] 14 points 2 years ago (2 children)

    i am worried about grad school. so many things come easy to me i dont have any skills to deal with things that dont come easy.

    ah the curse of the gifted child. i found grad school depends heavily on your relationship with your advisor, pretty much everyone i've seen quit over the years it's been because their advisor isn't supportive. like so many things it's less about how hard the work is and more about the social constructs built up around gatekeeping academic credentials.

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  • [–] 14 points 2 years ago

    Establish a sleep schedule. I just have to accept how important it is to everything I do.

    Work on my new relationship. It's my first open one and I got to learn a lot of stuff about communication and acceptance.

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  • [–] 13 points 2 years ago

    I'm considering trying to finally give up drinking since I recently learned that it's a mask of sorts and is also absolutely not healthy, especially mentally.

    And after talking with my therapist, I might be seeking medication again for my severe depression and anxiety. I want a promise that I won't have to jump through hoops when my SSRIs are almost out just to get more and I have developed a dependency for them because that super doesn't fucking help with the anxiety part. Looking at you amerikkkan healthcare system.

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    [–] 20 points 2 years ago

    I'd really like to get out more but I need to get over the initial social anxiety. I make friends but I always assume they secretly find my company annoying so I keep my distance until we lose touch. It doesn't help that everyone's busy all the time.

    When I met with a psychiatrist he told me that I'm hard on myself. I think about sometimes, but forget about it when I have negative thoughts and there's no one around to correct me and I end up spiraling a bit before going back to my regular depressive state.

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  • [–] 19 points 2 years ago (1 child)

    my first year with a diagnosis and on stimulants and it's probably been my best year since like childhood or something.

    Still feel like shit most of the time but at least the spiral is going up instead of down!

    community is great

    what do mods do, really?

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    [–] 18 points 2 years ago (11 children)

    Ok. Im actually kind of mad about this, but i dont want to cause problems in whats been a peaceful, positive thread.

    But i have to ask, as politely as possible, why is the veganism question part of the mod application for the neurodiversity comm? Would i be rejected for not following the hexbear party line on the subject?

    Because while i think veganism is a good thing to practice, ive been constantly put off by the way vegans on this site seem to not give a damn about the fact that a vegan diet can be difficult to literally actually impossible for autistic people. Whether its just difficulty changing habits like me, or whether its extreme cases of people with asd only being able to stomach a short list of foods like my friend. This is a neurosdiversity issue id like to discuss. But i frankly do not feel safe doing so here, not even in the ND comm. To see a question i feel is irrelevant to a person's ability to moderate an ND comm on the application makes me more certain of that. Seems like a way to filter out disent like that.

    Also without bringing up meta drama specifics, i know of other ND users who share my discomfort with the veganism discourse on this site, and the behavior of certain vegan users.

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    [–] 16 points 2 years ago

    Aphantasia and SDAM gang, we rolling thru swole-chonk

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  • [–] 15 points 2 years ago

    Currently too tired to say anything much, but wanted to say I appreciate the post and the community.

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  • [–] 15 points 2 years ago

    I'm just happy vibing here and occasionally dumping effortpost-tier comments in reply to people where my knowledge or experience is applicable.

    It's probably obvious that I've spent time on R*ddit doing the same thing but I've pretty much cut myself off from that shithole and it's nice to be in a space where I don't have to tie myself into knots just to talk about a particular subject like medications - I get that social media is not the space for providing official medical advice but it's not some gross violation of laws or some major transgression to convey information which anyone could find on the internet themselves if they put enough effort in.

    It's kinda a big equity thing for me, really.

    Neurodivergent people are much more likely to be unemployed and living in poverty. Accessing the care that neurodivergent people often need is usually extremely expensive, not to mention treacherous, to the point that it's prohibitive and the public healthcare waitlists, if they exist in your country, are often years long.

    Worse yet, specialist knowledge in autism and ADHD is extremely rare and most clinicians are sorely lacking in this regard.

    So it's like "Bro, just use all that money which you don't have to test out a bunch of clinicians who you can't vet prior to an appointment with them who will probably make you wait 6 months each before you can see them in order to figure out if they might happen to be suitable to provide you with a baseline level of care so that you can live a good life and maybe hold down a steady job too. Or you can wait and rot in a public healthcare waitlist for a few years, if one happens to exist, to get maybe a couple of appointments before you're ejected from the system entirely, after which you're expected to simply make do."

    Fuck that. What a shit system.

    If I am providing any information then it's either stuff that I have read in medical journals, it's come from experts in their field through things like public lectures, or it's stuff which I've had to figure out for myself by being halfway abandoned by the system.

    I ain't selling shit, I ain't promoting misinformation, and I sure as hell ain't trying to pass myself off as a doctor. I'm just stuck in this same vacuum of expertise and professional support that the rest of you are, with the only potential difference being that I've probably been at it a while longer and it just so happened that I managed to bend my interests into learning about stuff like medication as a survival strategy. In an ideal world I wouldn't need to be doing this at all. But until then...

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  • [–] 15 points 2 years ago (6 children)

    This year I fully accepted myself as autistic as well as ADHD. Got depression and anxiety on top of that. All part of the fun, I think.

    I had a big long thing written out about trauma and whatnot but I'm fucking tired. Once again stating my intent to do a book club for Unmasking Autism, and it'd be easier to manage that if I was a mod here, so why the hell not? I'll throw my name in the hat.

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    [–] 15 points 2 years ago (1 child)

    It's been nice being able to talk about my experiences and thoughts here. A lot of pieces have started to fall into place as I'm understanding myself.

    I appreciate the space Hexbear and the mods/users have cultivated here.

    I like being able to ask questions here without fearing judgment.

    I've thought about making posts like, 'What's a niche topic you want to talk about?' and making space for people who've done a lot of research about something, but had no space irl to talk about it.

    Another post idea is like a weekly check-in to get a sense of perspective on situations that might seem ambiguous.

    However, that sharing certain quirks around our experiences or special interests could offer too much identifying information or that such posts might turn into a therapeutic space instead of a community if that makes sense.

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  • [–] 12 points 2 years ago

    I've thought about making posts like, 'What's a niche topic you want to talk about?' and making space for people who've done a lot of research about something, but had no space irl to talk about it.

    Ooh an infodump thread! That sounds like fun.

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  • [+] 14 points 2 years ago* (last edited 1 year ago) (5 children)
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    [–] 14 points 2 years ago

    I don't have any suggestions for changes, I'm satisfied with everything the way it is! This place has been a wonderful resource, thank you very much for making it available.

    The only thing I feel compelled to comment on is what it means to me - it's special to me. It's a compassionate, supportive, and informative place. I genuinely don't know what more I could ask, everyone is lovely and the diversity of approach and thought is always helpful.

    Thank you all. ❤️

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  • [–] 13 points 2 years ago (5 children)

    This semester really convinced me that I have ADHD. I haven't gotten a diagnosis because I don't know how to go about doing that. My brain is not fun and quirky and full of energy, I just get really tense if I'm sitting still and always need to have something tactile in my hands and I can't focus very well. Executive dysfunction kicked my ass during exam season, knowing I had to study but not being physically able to bring myself to open a book made me feel terrible.

    My goal for 2024 is to get an evaluation. Whether I get diagnosed or not, I just want to know more about my mind, because I don't understand why I'm like this

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    [–] 12 points 2 years ago

    ❤️🐿️

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  • [–] 12 points 2 years ago

    Changing diet is hard and honestly imma just stick to not eating fast food as much as possible lol

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  • [–] 12 points 2 years ago (4 children)

    Does anybody else get unusually horny from Vyvanse? My sex drive is usually so low without it that I thought I was asexual for years before I started taking it.

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    [–] 11 points 2 years ago (1 child)
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    [–] 11 points 2 years ago

    Don't have any ideas/feedback for the comm, but I figured I'd take the opportunity to talk about something I've had to deal with recently since I don't know where else to talk about it:

    [TW: Surgery, open wound that's gross but not too serious]Had surgery on December 1st to repair a small hole in my left eardrum that I've had for most of my life. Surgery itself went well, and it seems like the hole in the eardrum hasn't reopened, which is nice. It was a pretty major disruption my normal schedule though, due to temporary hearing loss & nausea, not taking my meds for a few days afterward, and not really getting any physical activity due to heavy lifting being off the table for the time being (cardio is fine, though I've barely done any outside of walking around at stores). Basically, it feels like my ADHD has been noticeably worse the past few weeks, though it's been getting better as I've recovered.

    More recently though, I had a problem with one of the incisions from the surgery opening back up. During the surgery, the method they used meant that almost everything could be done through the ear canal, but they had to make two incisions on the outside. One on the back of my ear to get a piece of cartilage, and one on the scalp just above & behind the ear to get a bit of muscle fiber, both of which were used to help repair the eardrum. Those incisions were both sealed up with dissolve-able stitches that were supposed to last for around 5 weeks iirc. And the ones on the back of my ear are still holding up fine, but the ones on my scalp came undone.

    Not entirely sure why they came undone, though I caught a cold a couple weeks ago that's been causing me to cough more than normal, so that's the most likely reason. Regardless, I realized it had opened back up at the beginning of last week. Wasn't too concerning at first 'cause it was covered by a scab, but that slowly fell out and I was basically left with a gaping wound by Christmas Eve (about 1 inch long, and about 1/8 of an inch wide & deep). Fortunately it didn't get infected, it wasn't really bleeding/discharging in any noticeable amount, I still have plenty of the the antibiotic ointment they gave me to put on it after the surgery, and it seems like it was starting to slowly close itself back up over the past couple days. So it honestly wasn't that bad aside from the general grossness of it.

    I did get it checked out at an urgent care facility on Christmas Eve, and the Nurse Practitioner there gave me some oral antibiotics but said that it'd be risky to try and stitch it back up due to possible abscess build up. Today I was finally able to go back in for an appointment with the ear specialists (though not with the surgeon herself unfortunately), and they decided it was best to go ahead and stitch it back up, this time with regular stitches instead of the dissolve-able ones. Not going to declare my problems with it to be over yet, but hopefully it'll continue to remain uninfected and heal better/faster now.

    Other than that, I'm actually doing pretty okay all things considered, just bit more tired & stressed out than usual. Also been working on my music more lately, probably mostly out of boredom tbh, but I've at least managed to make some pretty cool ideas. Was able to turn one of them into an almost fully complete track in under 24 hours, and a few others are half complete in a similar amount of time, which is more than I'm usually able to do lol.

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  • [–] 11 points 2 years ago (4 children)

    I thought this was an invitation to hang out on hextube

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    [–] 10 points 2 years ago (1 child)
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    [–] 10 points 2 years ago* (last edited 2 years ago) (4 children)

    I can't find remote work for shit. Most companies offer hybrid jobs with 2-3 WFH days at best. I don't know if I will be able to manage working on site, and having to socialize with allistic coworkers all day. I am sick of placating their egos by asking questions about their lives or boring hobbies while they, the supposedly empathetic part of humanity don't give a fuck about mine, that or dissociating during group conversations and wanting to go home.

    Of course the fucking online casino companies offer remote work, with great salaries but I don't want to work for a company which besides the usual worker exploitation, also exploits the vulnerable users of its products (a large percentage of which is probably ADHD people).

    Should I compromise on either my mental health or my morals? Or should I keep looking (4 months have passed since I started)? This whole process makes me want to disappear. I truly want to work and feel useful, but no-one wants to accommodate me, even if I am very good at what I have studied

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