this post was submitted on 22 Apr 2025
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[–] [email protected] 11 points 23 hours ago

Just the fact these mediocre people want to handle so much delicate data should be enough to call for a General Strike...

Americans are now the personification of the myth of the idiot who thought cruise control was self-driving; set it up in his RV and went to the back to take a nap

[–] [email protected] 18 points 1 day ago
[–] [email protected] 8 points 22 hours ago

Ah a registry to track undesirables. Jesus fucking christ.

You know if you allow this, they'll expand it to other groups as well, right? I am constantly amazed that full-blown riots haven't started. Peaceful protesting isn't doing it, you guys.

Unless of course you're all just very excited for those arm tattoos.

[–] [email protected] 51 points 1 day ago

Reminder: this is the same guy who wants to send neurodivergent people to work camps to "cure" their "addiction" to lifesaving medication.

This reeks of an excuse to register everyone who's on the spectrum in order to make that atrocity reality.

[–] [email protected] 104 points 1 day ago (2 children)

Medication records from pharmacy chains, lab testing and genomics data from patients treated by the Department of Veterans Affairs and Indian Health Service, claims from private insurers and data from smartwatches and fitness trackers will all be linked together, he said. 

The NIH is also now in talks with the Centers for Medicare and Medicaid Services to broaden agreements governing access to their data, Bhattacharya said. In addition, a new disease registry is being launched to track Americans with autism, which will be integrated into the data.

Between 10 and 20 outside groups of researchers will be given grant funding and access to the records to produce Kennedy's autism studies. Bhattacharya did not give details on how they would be chosen, but said their selection would be "run through normal NIH processes."

I don't want to be on a federal autism registry, especially under this regime. How long before RFK announces his "Final Solution" for the "Autism epidemic"?

[–] [email protected] 58 points 1 day ago (3 children)

Sounds like not being diagnosed is a boon.

[–] [email protected] 29 points 1 day ago (4 children)

Yeah I’m very very glad I’m “just” ADHD. When I was diagnosed it wasn’t possible to be diagnosed as autistic and ADHD. They didn’t fully change that until I was well an adult. I was more ADHD as a kid so, ADHD it was.

I didn’t realize until I was middle aged that I’m probably level 1 and on the spectrum as well as ADHD.

So, it’s like you said, maybe a blessing in disguise. I just don’t want all my brethren and all of my sisters who did get diagnosed to face a horrible fate.

Us neurodivergent need to stick together. Justice for all.

[–] [email protected] 9 points 1 day ago* (last edited 1 day ago)

First they came for the ~~socialists~~ immigrants, and I did not speak out, because I was not an ~~socialist~~ immigrant. <-- WE ARE HERE

Then they came for the ~~tradeunionists~~ transgendered people, and I did not speak out, because I was not a ~~tradeunionist~~ transgendered person.

Then they came for the ~~Jews~~ neurodivergent, and I did not speak out—because I was not ~~a Jew~~ neurodivergent.

Then they came for me—and there was no one left to speak for me.

—Martin Niemöller

[–] [email protected] 18 points 1 day ago

💯

Here's hoping nerodivergents can band together and rise in the shadows to create systems that are far better than what society currently offers, and outcompete to such a degree that the corporations atrophy and die.

[–] [email protected] 14 points 1 day ago (1 children)

You hope so. For your sake, I hope they leave you alone too.

[–] [email protected] 13 points 1 day ago (1 children)

Thank you thank you. I have a strong feeling they won’t stop with just Autistic people. We will persevere. ❤️

[–] [email protected] 12 points 1 day ago (1 children)

Uh, I hate to be the one to break the news but he’s spoken about not stopping with autism Adderall labor camps

[–] [email protected] 8 points 1 day ago (1 children)

I prefer the term concentration camp.

[–] [email protected] 1 points 23 hours ago
[–] [email protected] 12 points 1 day ago

I am fairly certain I fall somewhere on the autistic spectrum. Somewhere at the top end on the mild/high-functioning/low-support-needs/however-you-want-to-describe-it.

I've never felt a need to pursue a diagnosis, I don't think putting it on paper and making it official has anything to offer me that's worth the aggravation of dealing with extra doctors appointments and such to get diagnosed.

But I've occasionally considered doing it so that I could potentially participate in any sort of research being done that might possibly help autistic people with higher support needs. That would be worth the aggravation.

But holy fuck does this administration make me glad I never did.

I always had a little paranoia that a diagnosis would be more trouble than it's worth beyond just the annoyance of getting diagnosed. That somewhere I'd encounter some bullshit regulation where I'd be considered mentally unfit for something, or be disqualified from a job, or just have people treating me different if they found out.

But now it's very clear that that's sort of the plan, where a diagnosis would probably be actively used against me instead of just being the result weird edge cases where I might slip through the cracks due to some outdated poorly worded policy.

[–] [email protected] 9 points 1 day ago (1 children)

Have I finally flaked out enough that it's actually helped me?

[–] [email protected] 8 points 1 day ago (1 children)

If you have any history of diagnosis or treatment for ADHD you're fucked if they get this far. These people don't care about the differences. I've taken stimulants for a decade, and considering the only thing between this administration and those records are a call to Walmart? I've got my passport close and am job hunting in Sweden/Germany.

[–] [email protected] 2 points 19 hours ago* (last edited 19 hours ago)

Oh, I've got zero history of diagnosis or treatment for anything. But it's become very apparent I definitely have multiple things lol. I just don't really see doctors and that will someday be a problem.

So many people I know have been diagnosed and are on treatments though, and the fact that we've already gotten to the stage of disappearing protected classes despite court orders is troubling as hell to put it mildly. I want to believe we can still stop this before the worst happens, but securing a stable life elsewhere is frankly not a bad idea.

[–] [email protected] 23 points 1 day ago (1 children)

Just as bad if not worse, they'll come up with some bullshit treatment that is at best useless and at worst harmful, and if you don't submit your autistic children to it you're "abusing them".

[–] [email protected] 8 points 1 day ago (1 children)

"People are saying bleach cures autism..."

[–] [email protected] 1 points 19 hours ago

Well, if you consider death to be the final cure, it sure cures lot of things...

[–] [email protected] 75 points 1 day ago* (last edited 1 day ago) (1 children)

"... a new disease registry is being launched to track Americans with autism ..."

This is unbelievafuckingbly ominous.

[–] [email protected] 32 points 1 day ago (1 children)

It's exactly the sort of thing these conspiracy assholes claim has been done by others too.

[–] [email protected] 18 points 1 day ago

Always. It's always projection. Complain about their 'free speech' being violated, then start deporting people for speaking freely, first chance they get. Act like you care too much about the kids to allow drag queens to read books to them in a public library, then support politicians that want to legalise child marriage and send children to work in the mines. Complain about the 'feminazis' acting like all men are rapey, then become the number one fan of Andrew Tate.

At this point, don't believe a fucking word that any of these mouth breathers have to say. And consider any accusation to be a confession.

[–] [email protected] 24 points 1 day ago

I'm going to talk to my hospital's IIRB about this. I'm fairly certain the records they can access are related to existing research, and you can demand the IIRB to pull access to this data.

Additionally, so long as it is classified as psychiatric notes, it may be possible to restrict a diagnosis further.

If you have concerns, contact your primary care, your psychologist or psychiatrist. I don't know what good it will do, but any healthcare provider worth their gold will raise it to their IIRB and the IIRB is the one who will be able to prevent this.

Do not sit idle with this one. If you have the means, GTFO of the US.

[–] [email protected] 29 points 1 day ago (1 children)

While the selected researchers will be able to access and study the private medical data, Bhattacharya said they will not be able to download it. He promised "state of the art protections" to protect confidentiality.

I'm willing to bet this whole database will be leáked within hours.

[–] [email protected] 19 points 1 day ago* (last edited 1 day ago) (1 children)

I think I was just added to JFK Jr.'s Signal group-chat.

[–] [email protected] 8 points 1 day ago

You’re lucky. I got added to a chat with Vance. He keeps going on about a “sweet little futon” he banged last night:

I gotta be honest, I really don’t want to know what he meant.

[–] [email protected] 37 points 1 day ago (2 children)

UHG. this makes me ill.

Particularly because I do not want to participate in medical studies without my consent. Unfortunately, your doctors have been filing your private health data in for study for a fairly long time.

[–] [email protected] 20 points 1 day ago* (last edited 1 day ago) (1 children)

This isn't just about medical studies. They don't need "a new disease registry" "to track Americans with autism" in order to do medical studies...

In addition, a new disease registry is being launched to track Americans with autism, which will be integrated into the data.

[–] [email protected] 40 points 1 day ago

It’s for using it to remove undesirables.

RFK is a eugenics asswipe. He’s going to be using it to harm people.

Which, way back when I got into this row with my ex-doctor, it was “I want to maintain control of my data, I don’t want people using it without me knowing or without my consent.”

He laughed saying exactly this would never happen and I was being paranoid.

[–] [email protected] 4 points 1 day ago

when a doctor sees you, even if nothing eventful goes in during the appoint, they have to write up a summary of your whole visit, if you ever get a chance to see your medical records, they will have pages and pages of you, even if you had a short visit, said certain symptoms that dont match.

[–] [email protected] 32 points 1 day ago

Hmm, Nazis tracking which citizens they consider inferior, while expanding the concentration camps. It might be time to stop them.

[–] [email protected] 24 points 1 day ago (1 children)

Lawmakers in Republican states have already been doing this. They got caught. I tried to warn people about this a year ago. They thought I was a nutter. I’m tired of being right.

[–] [email protected] 3 points 1 day ago

I noticed you noticing

[–] [email protected] 13 points 1 day ago

RFK looking over the Autism data: The health implications are clear!

[–] [email protected] 12 points 1 day ago (1 children)
[–] [email protected] 4 points 1 day ago

Don't let this government know it.

[–] [email protected] 12 points 1 day ago

No good things will come from this.

[–] [email protected] 6 points 1 day ago
[–] [email protected] 2 points 1 day ago

Is the study going to include Trump? Or is he in denial?