The disability benefits system is broken. It has not adapted to a world where disability and ill health are more prevalent, and more complex in terms of the variation of impact on people's lives or the support that could help.

Disability often results from medical conditions, and is worsened by challenges accessing health services and social care. It is also exacerbated by the barriers to participation in society and the economy – such as limited access to education, poor quality transport infrastructure, employment discrimination, and inflexible workplaces – that disabled people face.

Over the last 20 years the main policy response, in the face of rising costs, has been to make claiming disability benefits more difficult.

Additional Links/Reading: CWs in spoilerCWs: ableism, discussions of trauma, medical ableism, neglect and abuse, eugenic and capitalist undertones/viewpoints

Disability Benefits in Different Countries

Half of disabled people ‘humiliated’ during benefits assessments, new research finds

Center For American Progress - How Dehumanizing Administrative Burdens Harm Disabled People

Disability News Service - UN committee asks government: ‘Why are you demonising disabled people?’

Cryptpad for copied report from Australian Federation of Disability Organisations (AFDO) on harm caused to individuals with disability by their interaction with Centrelink’s Disability Support Pension (DSP) application and review processes from 2021


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As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

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top 50 comments

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[–] 6 points 15 hours ago

Guy who did the racist lecture is now talking about "Individuals with penises" and "Individuals with vulvas". Either someone talked to him, or he's selectively an asshole.

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  • [–] 6 points 1 day ago

    I just don't think they should arrange for lecturers after 18:00. That should be a rule. What do you mean I have to go to uni at 20:00.

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  • [–] 9 points 2 days ago (2 children)

    The antibiotic ointment isnt working as well anymore after only 5 days and the infection is spreading kitty-cri

    I contacted a compounding pharmacy to see if they could make an oral antibiotic im not allergic to but even if they can, ill have to do another bullshit telehealth appointment and get them to coordinate with the pharmacy, wait for them to make it, get it shipped, and then wait for it to kick in

    Also cant go to my pottery class (missed last week) because I have to wear gloves during it due to my regular sensitive skin issues and might just not be able to go for most of this semester and it was really expensive :(

    Hate being disabled and my adoptive family doing everything they can to make it worse

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  • [–] 8 points 2 days ago

    Yeah I'm absolutely not cis. I might not even be a nonbinary male.

    Anyway the cheap AA powered clippers from Family Dollar seem to work adequately!

    Then again I'm using some nice high quality NIMH batteries which are more then happy to supply a couple amps to things.

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  • [–] 8 points 2 days ago (1 child)

    was lonely today, had violent thoughts, fun stuff

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  • [–] 7 points 2 days ago (4 children)

    Spent all day at the hospital today. Just horrible. First I had my stroke clinic check up, which I hate because they are so pushy about trying to make me have extra meds and blood tests. They were over an hour late for my appointment and then sent me down to the phlebotomist where I had to wait for nearly another hour to be seen, dreading it the whole time as I am very squeamish and sometimes faint. Then I had my eye clinic appointment in the afternoon and they are always so late and do so many tests and you have to wait to be seen in between each test, in the end I was sitting around in the hospital from about 10am-6pm and now I am just exhausted. I wouldn't keep going through this if I didn't need to do it for my benefit claim, it doesn't even bring me any health benefits. It means disabled people don't have the same rights as everyone else - if other people want to quit medical treatment they can just do that, but if I want to quit they'll use it as an excuse to impoverish me to death.

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  • [–] 5 points 2 days ago (3 children)

    This is degrading beyond words, having you go through all of this over and over again for the benefit thing is absolutely not okay. Like you said, they do this on purpose, but it's always horrible to read what they put you through. I'm sorry your day was like this, I really wish it could have been nicer cuddle

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  • [–] 5 points 1 day ago (2 children)

    Thanks. meow-hug On the plus side it looks like I'll be getting discharged from physiotherapy soon, as it is not working and the physio basically said it's a waste of NHS appointments. It's tiring going to physio and doing all the exercises all the time for no reward. I've only kept up with it this long for my benefit claim, and I'm long since resigned to being permanently disabled. My only worry is that at my next assessment the DWP will use this against me, saying "You're not having physio? Then there is nothing wrong with you!" But if I've spent years having physio and it hasn't worked, how is that my fault? I will ask the physio to write me a letter saying I've had all the treatment and it hasn't worked and they won't treat me any more, but the DWP will only accept letters that are less than 6 months old and by the time of my next assessment it will be older than that.

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  • [–] 5 points 1 day ago (1 child)

    Okay, first I'm glad you don't have to attend physiotherapy any longer if it doesn't work for you. second, I really hope you don't get into trouble for not having to go there anymore when the next benefit claim comes around the corner.

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  • It's the only thing I'm worried about. At previous reassessments they have used the most spurious excuses to deny my benefit claims. Straight after my stroke, I was on the waiting list waiting for physio to start, and they used that as an excuse to stop my benefits: "You are not having rehabilitation for the stroke, therefore it is my judgment that you are capable of the physical activities you say you cannot do," or words to that effect. The fact that I was on the waiting list for treatment was ignored. Also I had spoken during the assessment about how the stroke had caused me to lose a quarter of my vision which was giving me trouble crossing the street safely etc, and the assessor suggested I could just walk around constantly rotating my head 360 degrees to achieve a full range of vision, and so it was decreed that my visual issues would not be taken into account and I was given zero points and my money stopped. They will use literally any excuse and make me go through appeal.

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  • [–] 10 points 2 days ago (4 children)

    How do you deal with the expectation to have a "career", and like a structured 9-5? I'm coming around to just saying fuck societal expectations, but I don't actually, practically know how to live like that.

    But another way I've thought of things is that I essentially have two options. I can do the middle class life thing, own a car, have a few hours a day of free time, work towards buying a house by the time I'm 50. The daily life would suck but it would be somewhat predictable. On the other hand, I could live according to my own clock. Let money be secondary to keeping myself alive and passionate. Look for and accept whatever help I can get without shame. It seems more risky, but the risk of living the other life is that I hate it and destroy myself

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  • [–] 7 points 2 days ago

    On the other hand, I could live according to my own clock. Let money be secondary to keeping myself alive and passionate. Look for and accept whatever help I can get without shame.

    I live in the US. It's abundantly clear this fascist shithole doesn't have much time left, so I'm essentially going to do that.

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  • [–] 7 points 2 days ago

    [From the perspective of someone physically "able bodied" but wracked with executive dysfunction]

    It is technically possible to get a "9-5" job that doesn't mentally torture you. Often times it's only possible after working somewhere for a while and finding a little niche job nobody else wants to do. Often times the neurotypical people are allergic to jobs that are tedious or require focused attention AND outside everyone's normal scope of daily work. Something like taking stockroom inventory [somewhere that isn't retail] or doing a routine safety inspection is often on like a rotating list of people who get forced into doing it. Start volunteering to do these types of jobs and everyone will be so happy they don't have to that they won't notice it takes you 3x as long as it "should"

    I can't say i know how to reliably obtain a job that feels good to have but they are possible to get. Construction is nice for me because i change job location quite often and don't get stuck in a rut.

    Hopefully any of that is helpful but also solidarity. Working for the right to have free time is brutal

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  • [–] 5 points 2 days ago

    You're not alone, I'm struggling with the same thing. It's impossible for me to answer that question, so I'll just say I'm afraid of the same thing you are. Maybe there's a silver lining somewhere in the 9-5 job, but I really can't say.

    Here's a hug, if you want one. meow-hug

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  • [–] 8 points 2 days ago* (14 children)

    Lecturerer referred to doing something "normally" and doing it "chinesely"

    The Chinese way is using math. The normal way is measuring it. The only East Asian student in my year isnt here, but the oof size is off the charts.

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  • [–] 8 points 2 days ago (12 children)

    What a disgusting thing to say. I know these types of jokes from high school too.

    CW: Racism/SinophobiaOne of my physics teachers once said "Back in the day, we had to use calculators for this. Today, that's what we have the Chinese for".

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  • [–] 6 points 2 days ago (1 child)

    You know what? I don't want to be reading racist shit.

    Thank you Lemmy's spoiler formatting functions, and thank you gingerbrat for putting that in a spoiler!

    Now if you'll excuse me I'm going to continue playing Spider Solitaire on my phone and continue processing through my current gender related existential crisis.

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  • [–] 5 points 2 days ago (9 children)

    Eugh.

    I know this is secondary to the racism, but I also have to mentally adjust each time I see people laughing along with it. Like oh I thought people were cool. But no.

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  • [–] 5 points 2 days ago (8 children)

    Yeah, the amount of classmates who laughed back then was terrifying. Like, a handful of people looked disgusted but the vast majority just thought it was a really witty/funny comment.

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  • [+] 2 points 2 days ago* (last edited 1 day ago) (7 children)
  • [–] 4 points 2 days ago (6 children)

    Racism is so normalized, it's astonishing how unfiltered so many people are. (Small mod note, can you please put a spoiler tag around your comment? Thank you sweetie.)

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  • [–] 3 points 1 day ago (5 children)

    I removed it because the spoiler tag just didn't seem to be working properly for me.

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  • [–] 2 points 1 day ago (4 children)

    Are you using an app or your internet browser for hexbear? I know the spoiler formatting can be strange sometimes depending on what platform you use it on.

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  • [–] 3 points 1 day ago (3 children)

    An internet browser. I am terrible with technology anyway though.

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  • [–] 2 points 1 day ago* (2 children)

    No problem, sweetie, I'm not that good with it either. But I went ahead and tried to make a step by step explanation for using spoiler tags. Hope it helps!

    Screenshot of the location of the spoiler button. A yellow arrow is pointing up at the button

    Once you need a spoiler marking for a content warning, click on the button pointed out in the picture.

    Screenshot of the spoiler formatting text.

    After clicking the button, the formatting for the spoiler text will appear in the comment text field.

    Screenshot of the spoiler formatting text. A red circle is drawn around the second spoiler.

    The first thing that needs to be changed is the second "spoiler". This is where the content warning goes.

    Screenshot of the spoiler formatting text. A green circle is drawn around the three underscores.

    The second thing that needs to be changed are the three underscores. This is where the comment goes that needs to be content warned.

    Screenshot of the spoiler formatting text. The second spoiler has been substituted with "CW: Content Warning", underlined in red. The three underscores have been substituted with "A story or sentence that requires a specific content warning", underlined in green.

    Once you are finished writing both the content warning and the comment, this is what the comment should look like.

    Screenshot of the spoiler formatting text as a finished comment. It reads "CW: Content Warning".

    To make sure the formatting is correct, click the preview button beneath the text field. You should be seeing the content warning, but not the comment. When you click CW: Content Warning now, the comment should be visible directly beneath it. If that is the case, the comment is ready to be posted.

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  • [–] 8 points 3 days ago (2 children)

    i hate that i basically only have the energy to exist. thought about going out to get some food, then thought about how i would have to dress properly, talk to people who were in customer service mode, sit up for an hour.....

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  • [–] 7 points 3 days ago (4 children)

    One of my professors told me that "Oh yeah I can't tell the difference between these things either" for two things I have to distinguish for my exams.

    Well fuck

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  • [–] 5 points 3 days ago (3 children)

    Then... How do they expect you to know??

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  • [–] 9 points 3 days ago (9 children)

    After being able to take my meds, I actually managed to sleep enough to dream last night and what a dream it was! I dreamt that I became a successful author, and made millions of pounds. Then the 1984 miners strikes started again (I know, it was a dream, it doesn't make sense) and I took great pleasure in sending cheques to the mining communities, huge amounts of money to enable them to strike for as long as they needed. It was great. I felt calm knowing that I had enough money to never be homeless or hungry again, and fulfilled that by helping the miners I was making a difference in the world. I was so disappointed when I woke up and it was all a dream.

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  • [–] 7 points 3 days ago* (last edited 3 days ago) (8 children)

    Clearly the conclusion is that you must become the good JK Rowling. Don't let your dreams stay dreams or however it goes.

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