Disabled Community Megathread from September 22nd, 2025 to October 5th, 2025 (hexbear.net)

submitted 7 months ago by un_mask_me@hexbear.net to c/disabled@hexbear.net

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"Change means growth, and growth can be painful. But we sharpen self-definition by exposing the self in work and struggle together with those whom we define as different from ourselves, although sharing the same goals...this can mean new paths to our survival."

Audre Lorde, Sister Outsider - Essays and Speeches

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"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

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[-] Keld@hexbear.net 4 points 6 months ago* (last edited 6 months ago)

A 3 fold post

1: The only place I could get a shift is outside my bus pass range and while I was considering the route someone snatched it.

2: My doctor said I could get my meds cheaper if I did a "subscription" type deal with my meds, and I told him about how that program actually makes your med more expensive. We did the math together and now he's mad at the pharmacist.

3: I bought myself some vegan yoghurt as a treat, my first frivolous purchase of the month . This is so not worth it on a monetary level but its nice to have a little snack.

[-] DisabledAceSocialist@hexbear.net 4 points 6 months ago

Well I got my urine sample results back. It showed "mixed growth." The doctor says this probably means it just got contaminated somehow, but I googled it and it says this could mean I'm infected with multiple strains of bacteria, or be a sign or underlying urinary tract abnormalities. Anyway she said she will leave a sachet of antibiotic and some tablet to calm the bladder. Knowing my luck, I'll get side effects. She said she also did a test for "ovarian marker" whatever that is, and it's elevated, which "could be nothing, or could indicate a tumour." She said she's going to arrange for me to have an urgent ultrasound to check. Meanwhile I'm still awake all night, going to the toilet constantly and just really stressed about the whole thing. My urine smells bad and is very yellow no matter how much water I drink, i really do think it's an infection.

And on top of all this I'm no longer getting any mutual aid donations. I got some towards my transport costs, then it just dried up. I've not had a single response to my food aid request, despite reposting multiple times, and no more towards the transport. At this rate I'll have to spend the transport money I got on food, then how will I get to my hospital appointments?

Oh god, why does life have to be so endlessly, incessantly shit? So anyway, how is everyone else?

[-] gingerbrat@hexbear.net 3 points 6 months ago

Replies are better late than never

I'm currently headed off to bed, but I did want to reply you before I do. Mixed growth does sound disconcerting, and I also don't think it's a contaminated sample. While I hope the ultra sound doesn't turn up anything worse, it may shine a light on why the pain and problems persist. I can only speculate as to what your symptoms mean, so I'm not gonna do that because you already have too many unknowns to worry about. I'm keeping my fingers crossed for you, sweetie.

Same goes for the mutual aid requests. I hope someone at some point can reach out to you cuddle

I wish I could tell you why it has to be so shit, but honestly, I think that's just the baseline for a lot of people, and we're all somehow trying to make the best of it. As to how I'm doing, it could be a lot worse at the moment, but I'm enjoying that I don't have too much to worry about :)

[-] DisabledAceSocialist@hexbear.net 3 points 6 months ago

This might sound insane, but I'm hoping the scan does show something, even something bad. At least it would be an explanation, and would mean they could treat it and maybe these symptoms would finally go away. To stay in a state of limbo where I have these symptoms and nothing can be done, is too awful. It's like when they took three and a half years to diagnose my thyroid cancer, I was relived to have an explanation, and prove to everyone I'm not just a hypochondriac.

Anyway the antibiotic sachet they gave me yesterday didn't work and gave me a terrible rash and hives, with the worst diarrhoea I've ever had. The bladder calming tablets did nothing too. When the doctor calls back I will insist on seeing a urologist but she will probably say no again. And the waiting list is probably a year long.

Someone finally came through with a sainsburys gift card that I can hopefully stretch out for 2 weeks but I'll have to keep reposting because if I wait until that has run out and then struggle to get another reply, what will I do? I think mutual aid is almost dead now, it seems like hardly anyone is able to help any more, there are lots of people not getting a reply. I really thought mutual aid would keep me going until my appeal in january, but now it doesn't look like help will keep coming for much longer.

If you have any idea what my symptoms could mean, do tell me because it's something I can ask the doctor about.

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[-] TheSpectreOfGay@hexbear.net 4 points 6 months ago

love when life decides to give me a ton of expenses all at once... like i can afford it but i have such bad financial/scarcity anxiety AND im changing my anxiety meds so i'm hella anxious and its really rough

[-] gingerbrat@hexbear.net 4 points 6 months ago

I get that feeling. Had to buy a few things too that were anything but cheap these last couple of days and checked my bank balance multiple times to be sure I'm not gonna go bankrupt. It sucks, and it's made worse by the fact that everything is getting more and more expensive.

I hope your new anxiety meds will help you feel more at ease, but I imagine changing them while you're going through a tough spot is pure hell. Feel hugged, sweetie meow-hug

[-] TheSpectreOfGay@hexbear.net 4 points 6 months ago

thank you meow-hug

[-] Keld@hexbear.net 3 points 6 months ago* (last edited 6 months ago)

Edit:stupid complaint ignore

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this post was submitted on 22 Sep 2025

35 points (100.0% liked)

disabled

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