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this post was submitted on 22 Sep 2025
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disabled
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16 users here now
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Just catching up, and I'm sorry that your care is being handled so terribly. It's ridiculous how you get so many different opinions and advice from 'medical professionals' who don't even seem to have the wherewithal to look at your history before treating you and sending you on your way just to fend for yourself. Hope your pain subsides soon, and you can get some relief.
As a side note, I think the site itself has been hiccuping along the last day or so, and I haven't been able to see new posts/get updates in real time. Only posts I've made seem to load new comments right now and I've gotten a few bad gateway notifications. I'd try reposting your mutual aid post, maybe even delete the previous to help it get seen. Gingerbrat made a good point that the comm has been a little overloaded, and with it being the start of the month there's definitely more traffic. I don't think people are sick of you; you don't really post that often and you don't ask for much. It's hopefully just a poor combination of things.
Hope you can get some better support soon, I know it's really rough right now.
Thanks for the moral support.
Yeah the NHS is absolutely broken. Many people believe it's being deliberately destroyed because the powers that be want to introduce private healthcare instead. The pain with the bladder isn't so bad, what's destroying me is the fact that I feel like I need to go all the time, the feeling won't subside and I have to get up multiple times a night. It's even been leaking out.
Does deleting a previous post help a new one get seen? I didn't know that.
It won't help it get seen, it'll just prevent 'spamming' and help those who sort by new. You could even title it a repost and say you deleted the other to prevent spamming if you want, I think other users have done that in the past. The way they show up depends on how people browse; my default is by new but the site itself defaults to Hot which I believe is where the comment interactions (especially recent ones) are more heavily weighted, thus the bumping for visibility. I could be incorrect but that's been my general understanding.
And I feel you on the healthcare getting actively destroyed, it's pretty obvious they're trying to make things harder and less accessible to those who need it most.
Thanks for the idea. I have deleted the older ones now, however I can still see them. Is that normal? Are deleted posts usually still visible to the creator?
I really think they're trying to make this world like Ready Player One. have you read it?
Yes you can see all your deleted posts, they'll usually be marked as deleted but you'll still have access to them.
I haven't read the book, but I saw the movie ages ago. We're definitely getting eerily close to a true tech-centered sci-fi version of a dystopia. Did you like the book?
The film was pretty awful. It did not do the book justice at all. They changed a lot of things, for instance that ridiculous car race with king kong never happened in the book. The whole thing about Samantha being in an underground resistance movement and getting wade into it never happened in the book. The book was very different. The film just took the basic idea and made a different story out of it. I don't think they could really make a film out of the book the way it actually happened as a lot of the book was Wade doing things by himself, or his thoughts, that wouldn't translate well to screen. The characters in the film were totally different people than in the book - for instance Sho was a little kid in the film for some reason, he was an adult in the book, while Aech's character in the Oasis was some big monster in the film while in the book it was just a normal human male. Basically the film dumbed the story down and made it ridiculous and juvenile. The book also goes much more into the oppression of their hyper-capitalist society and how a few trillionaires own everything while everyone else is penniless. I highly recommend reading the book.
The book sounds good, I didn't like the movie and I can't even remember most of it. It sounds like something I'd add to my ever-growing reading list!
Yeah I'd give the film a 3/10 maybe. The book was a definite 10/10. They are two totally separate things in my eyes.