35
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 22 Sep 2025
35 points (100.0% liked)
disabled
278 readers
10 users here now
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.
Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Follow the Rules:
- This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
- Follow the principles of disability justice, as outlined in the link above.
- Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
- No COVID minimization.
- Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
- If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
- Please CW and spoiler tag discussions of ableism.
- When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
- Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
- Follow the Hexbear Code of Conduct.
Let's kick back and have fun!
As of December 2025, there is a Matrix Chat Room that adheres to the same rules as the community. If you want to join, it is an invite only server. Just knock to join. Should you have trouble with the link, you can contact the mods for help: https://matrix.to/#/#Hexbear_Disabled_and_ND:matrix.org
founded 1 year ago
MODERATORS
Unbelievable. I don't even know what to tell you. When I have a UTI and the symptoms are still there but the infection isn't anymore, my doctors usually don't prescribe more antibiotics but instead painkillers and suggest drinking more water, walking (I know, funny isn't it) and maybe some things that can help with bladder regeneration. Most of them cost a lot of money, but they basically help the inside of the bladder to reestablish a shield against bacteria and viruses. I doubt this is helpful, but maybe you can make some use out of it.
I think the shockwave therapy is probably a lot more painful if you're not used to being in so much pain. I hope it works out and gives you back the ability to walk.
As for mutual aid, I honestly didn't see your post yesterday, I was barely online. But I don't think people are sick of you or annoyed. Most likely it's that so many people need help, and I know that more and more hexbears block the mutual aid comm because they can't help out or because there's a lot of mutual aid posts that are crossposted to other communities (I'm not happy with that either) and clutter the other comms. So someone like you who posts regularly but not as intensively could just fall through the cracks. There's no ill will behind it, I'm sure, just utter helplessness and exhaustion.
Oh, I didn't know people could block subs in here. Yeah the world is deteriorating so quickly now, I guess everyone is burnt out.
What kind of things help with bladder regeneration?
A lot of people are, yes, but that shouldn't stop you from asking for help. Someone can help, at some point. It's just never certain, unfortunately
One of the things is D-mannose, it's a type of sugar, ironically, that helps the bladder form a protective barrier against bacteria and viruses. Bladder teas of all sorts can help too. With the bladder teas you will have to check which ones heighten your kidney function because that might be an issue for you in particular. Bladder infections usually mean that you didn't get enough water, which is difficult if you have kidney issues.
Thanks for the tip. I might give the d mannose a try, supplements usually don't agree with me but anything's worth a try at this point.