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this post was submitted on 30 Jun 2025
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disabled
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I haven't been contacted about the blood tests results yet. I don't know whether it's because there's nothing to report, or because the GP surgery is such a shambles now, or whether they're waiting for the endocrinologist to deal with it.
However I am amazed to be able to report that I got a response from my MP already. Last time I contacted him he didn't respond for 4 months. This is what he says:
*Thank you for your email regarding this matter, I deeply regret hearing about the challenges you are currently facing.
I have contacted the Secretary of State about this matter and I am awaiting a response.
In the meantime, if you have any further concerns or questions please do not hesitate to get in touch with me if you feel that I could be of any assistance.*
Maybe if they have to debate this in parliament I could get the law changed! Or maybe they are so desperate to prevent the births of more ADHD/autistic people that they will refuse to change it and force women to keep getting contraception anyway.
That's actually decent news about the MP response! I really hope it pans out, that would be wonderful to have that actually addressed. Fingers crossed that your results come back soon, and you can get some answers.
I got the blood tests back today, and they say there's nothing particularly wrong, everything is more or less within the normal range. Slightly reduced kidney function and very low TSH but my TSH is meant to be kept low to prevent the cancer from coming back, so that's acceptable. The pins and needles are constant now though. I managed to get an appointment with the nurse, she said she'll ask the GP and see what he thinks but she thinks it's not a big deal. OK so over the past 2 weeks my hair has begun falling out to the point I have bald patches and I now have permanent pins and needles but according to medics, everything's OK, nothing to worry about and they have no idea what the problem is. Very helpful, as ever.
That's utterly disappointing. I'm so sorry they're not taking you seriously and that it's such an uphill battle. I mean, it's obvious your body is telling you something is going on. You deserve better. Maybe that upcoming GP appointment will provide some answers or get you closer to a treatment option. Hope you're hanging in there okay, love, and that you're able to get some rest despite everything.
Thanks, but it's actually really starting to freak me out now. It just won't go away and this is even scarier than having cancer. I'm worried I could lose the use of my legs or something. And if it still hasn't resolved by Monday, I think I will have to cancel my upcoming foot surgery. it just doesn't feel safe at all getting this area injected with a load of local anaesthetic when I am having these problems.
I don't want to cause panic, but the tingling and pins as well as nothing out of the blood work makes me think this could be neurological. Maybe it's a nerve that is locked or wedged in?
I was thinking something similar. The tingling is spreading into my hands now. I think I'll phone the neurologist on Monday and ask for an appointment although god knows how long that will take. I don't have the energy to go and sit in the emergency department for 10 or more hours waiting to be seen. I've had this tingling feeling before, recently prior to and during migraines but it was just in one side and went away when the migraine did.
I hope you don't have to wait so long. Keep me posted on your progress!
Thanks.
I have some DIY B12 shots from ages ago and just injected myself with one in the hope it might help.
I hope it helps!
Definitely do what you think is best. Your comfort and care are the most important.
Thanks.