47
submitted 1 week ago by [email protected] to c/[email protected]

If you carry one thing with you today, let it be this: you are beautiful, you matter, and you are loved.

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

you are viewing a single comment's thread
view the rest of the comments
[-] [email protected] 2 points 1 day ago

That's utterly disappointing. I'm so sorry they're not taking you seriously and that it's such an uphill battle. I mean, it's obvious your body is telling you something is going on. You deserve better. Maybe that upcoming GP appointment will provide some answers or get you closer to a treatment option. Hope you're hanging in there okay, love, and that you're able to get some rest despite everything.

[-] [email protected] 3 points 1 day ago

Thanks, but it's actually really starting to freak me out now. It just won't go away and this is even scarier than having cancer. I'm worried I could lose the use of my legs or something. And if it still hasn't resolved by Monday, I think I will have to cancel my upcoming foot surgery. it just doesn't feel safe at all getting this area injected with a load of local anaesthetic when I am having these problems.

[-] [email protected] 2 points 1 day ago

I don't want to cause panic, but the tingling and pins as well as nothing out of the blood work makes me think this could be neurological. Maybe it's a nerve that is locked or wedged in?

[-] [email protected] 3 points 1 day ago

I was thinking something similar. The tingling is spreading into my hands now. I think I'll phone the neurologist on Monday and ask for an appointment although god knows how long that will take. I don't have the energy to go and sit in the emergency department for 10 or more hours waiting to be seen. I've had this tingling feeling before, recently prior to and during migraines but it was just in one side and went away when the migraine did.

[-] [email protected] 2 points 1 day ago

I hope you don't have to wait so long. Keep me posted on your progress!

[-] [email protected] 2 points 1 day ago

Thanks. meow-hug I have some DIY B12 shots from ages ago and just injected myself with one in the hope it might help.

[-] [email protected] 2 points 1 day ago

I hope it helps! meow-hug

[-] [email protected] 3 points 1 day ago

Definitely do what you think is best. Your comfort and care are the most important.

[-] [email protected] 3 points 1 day ago
this post was submitted on 30 Jun 2025
47 points (100.0% liked)

disabled

229 readers
14 users here now

Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).

What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.

Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Follow the Rules:

  1. This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
  2. Follow the principles of disability justice, as outlined in the link above.
  3. Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
  4. No COVID minimization.
  5. Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
  6. If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
  7. Please CW and spoiler tag discussions of ableism.
  8. When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
  9. Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
  10. Follow the Hexbear Code of Conduct.

Let's kick back and have fun!

founded 8 months ago
MODERATORS