377
Treatment for ADHD seems engineered to be difficult specifically for those with ADHD to obtain.
(lemmy.jelliefrontier.net)
this post was submitted on 10 Mar 2025
377 points (99.0% liked)
ADHD
10483 readers
457 users here now
A casual community for people with ADHD
Values:
Acceptance, Openness, Understanding, Equality, Reciprocity.
Rules:
- No abusive, derogatory, or offensive post/comments.
- No porn, gore, spam, or advertisements allowed.
- Do not request for donations.
- Do not link to other social media or paywalled content.
- Do not gatekeep or diagnose.
- Mark NSFW content accordingly.
- No racism, homophobia, sexism, ableism, or ageism.
- Respectful venting, including dealing with oppressive neurotypical culture, is okay.
- Discussing other neurological problems like autism, anxiety, ptsd, and brain injury are allowed.
- Discussions regarding medication are allowed as long as you are describing your own situation and not telling others what to do (only qualified medical practitioners can prescribe medication).
Encouraged:
- Funny memes.
- Welcoming and accepting attitudes.
- Questions on confusing situations.
- Seeking and sharing support.
- Engagement in our values.
Relevant Lemmy communities:
lemmy.world/c/adhd will happily promote other ND communities as long as said communities demonstrate that they share our values.
founded 2 years ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Your use of "chemist" makes me think you're out of the US.
Most ADHD meds in the US are "controlled substances" and that means our doctors can only prescribe up to three months at a time. After three months we have to have a follow-up appointment, then they can prescribe three more months of meds.
Plus the federal government decided that too many people were taking medications like Adderall. So their "solution" was to instate a cap on how much Adderall manufacturers can make. Which means there's now a national shortage of Adderall. And that shortage means folks with ADHD are frequently going without their meds entirely or are forced to call multiple pharmacies in the area to ask who has their meds in stock. (My health insurance through work requires me to use a mail-order pharmacy because it means cost savings for them. But that means I don't have the luxury of shopping around different stores to see who has my meds in stock - at least, not to fill the prescription through insurance and get the lower price. So if the mail order place is out, then I'm screwed.)
Our healthcare system is so fucked.
Adhd meds here are controlled substances too. It makes it so the prescription lasts only a month. But how many packs of meds you have on this prescription, is only set by your doctor. So I get 4 months refills and have to buy it within one month.
And yeah, med shortage over here is an issue too.
Yeah, the DEA wouldn't allow that. Where I'm at in the US you can only get one month at a time, and most people have to go to the doctors office in person to pick up a physical prescription.
You only have a 3-4 day window before your pills run out to do this, too, so if your pharmacy is out, you're fucked because most pharmacies won't just fill a control if you don't have other prescriptions with them (if they're accepting new controls at all). All because they're afraid of the DEA.
I've often day dreamed about starting a class action lawsuit against the DEA for discriminating against the disabled.
Anyone that might be thinking this is an exaggeration, it is not.
My wife has adhd and takes vyvanse for it, a strictly controlled substance. I have to be extremely vigilant about making sure her prescription gets to the pharmacy and that the pharmacy fills it correctly.
We recently moved across country. Here’s a fun puzzle to work on.
The amount of times I had to explain this to people and just exasperatedly go “so should I just prepare my wife to go through withdrawal of this medication she has been prescribed and taking for nearly a half a decade? Is that ok with you, is that an ok patient outcome? Is that what you’d let happen to your wife”
Luckily shes married to an angry, persistent, yet very polite man who will shame the shit out of people until he gets it fixed. But I have no idea how she was supposed to navigate this alone, while facing the terror of withdrawal.
How did you manage that? I've been worried about moving out of state for this reason (not that I have immediate plans, but I've thought about it).
It took a lot of persistence and luck. I had found my wife a new doctor to do her medication management and I ended up just politely hounding her staff explaining calmly but firmly the catch-22 I found myself in.
The trick I’ve learned over caring for my chronically ill wife, who I love with all my heart, is to be very nice to the front line medical people but to never give up. They take crap all day from angry people, so I make it my mission to never yell at them, never get cross with them. I just explain what’s going on and my goal is always to get them on my side, be my person on the inside.
That worked here too. After calling a couple times and being nice, one person working the phone remembered me and I could tell they wanted to help. I just kept asking them for options, people like it when they can be part of solving the problem. They got in the doctors ear about this and suddenly if she did a virtual evaluation of my wife she could write a preliminary prescription to fill the gap.
Is this how things should work? No. Should you have to beg and cajole and get lucky that someone will help you? Absolutely not. But this is how I’ve figured out how to navigate this broken system.
Tl;Dr - Be very nice to office staff, be persistent, make it a problem you can solve together, keep reminding them that you are advocating for a flesh and blood human being you care about and that them just suffering will never be a good enough answer.
Also don’t get frustrated if you don’t make progress and need to call back, I think it only took calling 3 days in a row for them to figure out they better help me or they were going to have to talk to me every single day