this post was submitted on 11 Jul 2024
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[–] [email protected] 2 points 4 months ago (1 children)

Yeah, similar. She has CRPS, and they just don't understand that very well. Since it's neuropathic, most drugs don't do much and she doesn't like the side effects anyway. They used to call it the suicide disease because so many people would just kill themselves rather than deal with the unending, untreatable pain. Treatments have gotten somewhat better though. Still, most doctors don't know what to do with her.

[–] [email protected] 2 points 4 months ago (1 children)

I just looked it up. It sounds awful. I’m sorry she has to deal with that, especially having so little information. I’m frustrated with the level of support I get for my trauma, but at least they can give me some definitive understanding of the mechanics. I really hope they learn more about her condition.

[–] [email protected] 2 points 4 months ago

Thanks, me too!