saplith

joined 1 year ago
 

Together with the Vanderbilt Kennedy Center and ACM Lifting Lives, SENSE Theatre recently presented a two-night performance Circus del Sé. Written by Blythe Corbett, PhD, James G. Blakemore Professor of Psychiatry and Behavioral Sciences and director of the SENSE Lab, the play about a young boy with aspirations of joining the circus featured 12 typically developing peer students and actors and 12 children with autism. Through theatrical games and role play, they entertained the crowd and, according to a study published the Journal of Consulting and Clinical Psychology, sharpened their social skills in measurable, meaningful ways. One in 36 children in the United States have autism spectrum disorder, a neurodevelopmental condition that effects cognitive function, communication and social skills. "The purpose of the study was to see if SENSE Theatre, a unique social skills program that includes trained typically developing peers, theatrical techniques and active performance of a play, can enhance social competence in youth 10 to 16 years of age with autism spectrum disorder," said Corbett, who was the principal investigator. The final sample in the study involved 207 autistic youth from Vanderbilt University Medical Center, University of Alabama and Stonybrook University who were randomized to SENSE Theatre® or Tackling Teenage Together, an active control treatment condition. "The findings show that the interactive theatrical intervention enhances social salience for relevant social information, such as faces, and this increased social interest results in greater motivation to engage with others," Corbett said. "As clinicians, it is important to consider novel ways to treat social skills beyond individual and group didactic approaches. Moreover, it is valuable to develop and study innovative ways to provide treatment for our patients that may otherwise be overlooked."

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[–] [email protected] 2 points 1 year ago

I continue to be team file a police report. Try with the school, then if that fails file a report with the school against the child. The age is suprisely low in many states. I've seen it as low as 7 years old. You file enough police reports against a child in a school, and suddenly you've got a very good case to bring to the feds about the school and their negligence. For older children, like preteens, they can even be forcibly removed from the school because the laws they're breaking. People can say you're ruining that other kid's life, but what about your kid. No one was worried about their life being ruined.

 

"My ASD son continues to be bullied at school, but nobody there seems to take it seriously. His teach said that 'he seems to start the arguments by annoying some of the other students.' O.K. Fine. Maybe this is true, but that doesn't justify bullying. How can I get the school to take this seriously?". P.S. Warning to parents: According to statistics, it is very likely that YOUR child with ASD HAS BEEN or IS BEING bullied. You need to investigate this now - BEFORE your child has been tormented for weeks or months or years! If after your investigation, you discover there has been no bullying against your child, then thank God for it. We changed schools to one that has zero tolerance for bullying and our son is in the playground without supervision and doesn't hit anymore, he is happy and wanting to go to school, stomach up sets are no longer and it was affecting him mentally and physically. The child with autism that is being bullied is being blamed for starting it by annoying others. Not only have there always been the bullying kids, there have been bullying adults who must interact him. Anonymous said... Putting it blunty,the little bastards who make these poor kids life a living hell,usually have 1 or maybe 2 big bastard bullies at home learning them there greedy bombastic bullying ways.

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[–] [email protected] 1 points 1 year ago

I think there there is an inherit disadvantage in not being typical

That is what I said. I ascribed no value to being atypical. That's you and it might reveal what you think.

I read your link and it's basically like "I mean that was bad then, this is now. I don't have any data to prove it, but left handed people totes don't die younger" C'mon, that's a ridiculous article that's all conjecture about how it used to true before that left handed people died young, but now it's totally different. They don't provide any hard evidence that it's different, but it totally is!

Let's say you're right because honestly I don't feel like arguing this point, but it's not my greater point at all. Let's say that left-handed people suffer no physical afflictions from being left-handed. Very cool, except every left handed person I know has suffered from being left handed and had to "mask" and accommodate the world being right handed. My point is that realistically, you cannot be accommodated all the time 24/7. It's all great and shit to say that you should be accommodated, but in reality that doesn't happen. Sometimes it doesn't happen because people are callus but sometimes it doesn't happen because it's not actually a thing that is possible.

For example, realistically when I was in grade school and the internet didn't exist how was someone going to accommodate my visual and auditory processing issues? When I was in college, most of the US had dial up and smartphones weren't ubiquitous. How was I supposed to be accommodated and also lead an independent life because those were my choices. Being shadowed by an able bodied person or sucking it up. There was no actual way for me to be accommodated beyond the experimental therapies that I have no fucking idea how my mom found before the age of the internet.

Being typical is easier. If you are 7ft it sucks. if you are 3ft and an adult it sucks. The world is not made for you. And you have to pay in ever time or money to get a great many things that other people effortlessly get. I would wish that on my kid. I don't care whatever fucking super power you think she'll get. I want her to spent her time at the park with her friends instead of at doctor's offices. I want her to hang to go to summer camp without me worrying if whatever aid will quit and then she'll have to come home. I want to spend my money to sent her to her fancy ass school and not worry that they'll tell me that she can't have the best education because she's too much trouble and she can go to the public school where she'll be accommodated all day long and isolated and miss out on so much.

Fuck that. I want my kid to be typical. I don't want her to need any kind of accommodation. I don't even want her to need glasses or braces or any other acceptable kind of accommodation because that's living life a little harder and what parent wants that for their kid? That's my point. I don't want it to be harder. And when you need accommodation, it's harder. Even something as minor as needing glasses for the rest of your life is harder than never needing them at all. If you can't understand that point, then you're just delusional.

 

Approximately 20% of people identify as neurodivergent, representing one-fifth of the entire world's population. Given this, it's shocking that most professional environments don't put more effort into accommodating neurodivergent people, whose abilities can contribute in significant ways to the company's success. Unemployment rates among neurodivergent adults are alarmingly high, ranging from 30 to 40%, a rate three times greater than that of individuals with physical disabilities and eight times higher than those without disabilities. As if we needed more proof that workplaces across the globe are simply engaged in diversity theater, a recent study discovered that 50% of leaders and managers express discomfort with hiring individuals who are neurodivergent. Neurodivergent individuals possess unique talents, perspectives, and problem-solving abilities that can give organizations a competitive advantage. Leaving these skills untapped does a huge disservice to neurodivergent individuals and employers who are constantly exhorting employees to think outside the box. Supporting neurodiverse employees Many resources exist on how employers can support neurodiverse team members, but as someone who only recently discovered that I am neurodivergent, the most effective way I've found to overcome my dyslexia-related challenges has been to talk about it with my colleagues.

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[–] [email protected] 1 points 1 year ago* (last edited 1 year ago) (2 children)

There are a lot of symptoms attributed to ASD on the DSM-5 that you could inflict on any neurotypical kid with enough trauma. I think we need to pay attention to the possibility that a lot of autistic kids are turning out disabled not because it is the natural development of their phenotype but because they get raised in an environment too disruptive to their needs even before they’re capable of expressing them.

I think there is some merit to this, just from observing people parent NT children. Many parents don't seem to think of their children as people and aren't willing to be inconvenienced in any way for them. Trauma and neglect definitely don't do any child favors. I don't think that 100% catering to a child doesn't them any favors either, but compromise is necessary for living with literally anyone.

Please do not do this shit. Not being able to see is objectively a disadvantage. You could find or create environments where the harm is reduced or even negated, but there’s going to be virtually none where it’s good without buts. It’s great that some communities of blind people feel proud of their own culture, but many of those are cultivating this extremely toxic tendency to disavow the possibility to cure blindness even for those for whom it is possible because they dogmatically latch onto an identity.

Equating autism and blindness in this way gives a legitimacy to these attitudes that they do not deserve and is fairly disingenuous about what autism is.

I think there there is an inherit disadvantage in not being typical. I'm not ND, but I do have several invisible afflictions that doctors acknowledge, but don't have a label for because well premies should be glad to be alive. I can't change my many many afflictions due to having been born early. It definitely was and still is a disadvantage and there is no cure. It's just how I am. I won't say that there aren't toxic people in let's say the blind community who cling to their afflictions, but I think it's important to know that sometimes you don't get a cure. You're just how you are. Premies born after me don't suffer the same disabilities as the premies I know who are my age because they get better care in the hospital and outside it. Great, but that does nothing for me who has perfect vision technically, but can't see so many things. or a great many things I'm just stuck with as an adult.

I'd like my kid to be typical. I want to be typical even now. It's easier. She's left handed and that sucks. It's harder to be left-handed. If it were possible to give her a pill to make her magically right-handed I'd give it to her. As it stands, her chance of death is elevated for no other reason than she was born left handed. Accommodation is cool and all, but all of society has an assumption about handed-ness. This neurodiversity. I wish I could give her a pill to make her neurotypical. Shit I wish I could take a pill that could make my brain process things right like it would have if I was physically okay at the right times. But... I don't think that will happen for me or her and I think it's okay to accept that. It's okay to take a fix if it ever happens too.

[–] [email protected] 1 points 1 year ago

Wholly unsurprising, but very sad. I have to say I'm very shocked that Florida is in compliance. There are some shockers in all the categories.

[–] [email protected] 1 points 1 year ago

Thanks for the rec. I'll check it out.

[–] [email protected] 1 points 1 year ago

The article focuses on this one little boy, but really this problem is systematic there. This is absolutely awful. What if a child with special needs was being abused? This situation proves the state doesn't care about those kids and would have left them right where they were.

 

A 13-year-old boy with Autism has been forced to live at UCHealth Longs Peak Hospital in Longmont for three weeks after his dad abandoned him and human service workers told hospital employees it would take months to secure placement for the boy due to a lack of resources. A hospital employee emailed State Representative Judy Amabile of Boulder last week asking her to intervene. The employee said Boulder County Human Service workers initially agreed to take custody of the boy and then refused saying he was safe in an emergency department. Amabile says state and county human service workers told her they are working on finding placement for the boy but she says it is unconscionable that he has been forced to live in a hospital for nearly a month, "I don't know whether the dad may or may not have reached out and ask for help but may not been able to get any help. Like we just... we don't know, but what we do know is that you can't just leave a 13-year-old in an ER for weeks on end with no end in sight." She says she also reached out to both Boulder County and State Human Service workers but they would only say that they were working on it. Madlynn Ruble with the Colorado Department of Human Services said while the state is working to increase residential treatment, it lacks options for children with highly complex medical and behavioral health needs, due in part to a lack of providers. "Every month there are children and youth who are either living in residential settings out of state, sleeping in county offices or hotels overnight, or staying in hospital or detention settings past when it is appropriate for them to be there," she said.

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"That led me to start reading a lot about the gut microbiome, the autonomic nervous system, and their connection with the brain and mental health," she says. Today, Holingue has joined the ranks of scientists seeking to understand the interplay between the brain and the gut microbiome - that is the vast array of organisms, including bacteria, fungi and viruses, that thrive in the human gut. It's clear there's a physiological connection between brain and gut, says Dr. Glenn Treisman, a professor of medicine and psychiatry at Johns Hopkins. For Holingue, the connection between the gut and mental health is both scientific and personal. Ultimately we may be able to understand how the composition of the gut microbiome or metabolites that are produced by the gut microbiome helps cause mental illness or neurodevelopmental conditions, or the ways those conditions manifest in different people. We're wrapping up a study at Kennedy Krieger Institute and Johns Hopkins where we're collecting physical health data, behavioral health data and gut microbiome data from a relatively small sample of autistic boys and girls, and trying to see if we find patterns between the types of microbes in their stool and what kind of co-occurring symptoms they have, like GI symptoms, sensory sensitivities, anxiety, and so on. Have you used your understanding of the gut microbiome and mental health connection to help with your own mental and digestive health?

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To see your personal experience reflected back to you in clear cut language can be empowering, because if there is a term for what you experience, then a conclusion can be made that you are not strange, which is how it can feel sometimes. The sound of perfect harmonies makes me feel like I'm being massaged in my head. I can feel tubas in my stomach. If someone raised their voice in anger, I could feel it physically. Within a couple years, I began studying with a sound healer and I started to understand the tremendous impact sound has on each of us. Using the word "Feel" to describe a sound was strange to them. I'm sharing this now because I feel as if I live in a world rife with misunderstanding and miscommunication. If you are someone who is sensitive to sound, you might seriously consider sound healing as a daily management tool as well as a healing modality the next time you're feeling unwell.

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[–] [email protected] 2 points 1 year ago (1 children)

I feel like what's wrong is that we think that even mental illnesses need fixing. There are some mental illnesses which can be fixed. They are temporary state in the same way that a cold is a temporary state. However, some mental illnesses are just how you are. You can take steps to mitigate it like the way that someone who can walk uses a wheelchair, but fundamentally it's all just life-aids, not a fix. If you have clinical depression, those pills are just life aids, they are not fixing anything. It's completely unlike when I fell into a depressive episode once. The pills fixed me because for me it was a temporary state. after a month I could just walk away. I think that's a difference that needs to be understood. A person who broke their legs using a wheelchair is completely different than an amputee using a wheelchair. One uses the wheel chair as a temporary aid until they are "fixed" and one has an eternal state that will always need the aid.

I think it's unfortunate that people feel shame about needing life-aids permanently or temporarily. I was born physically disabled and I lean on any crutch I can. I really think this is why I've been able to effortlessly support my child and she doesn't feel any kind of way about her condition with autism. I'm always saddened by parents who refuse to give their kid life-aids because they want them to be "normal". Even before I knew my kid had ASD I offered her anything that would aid her because who cares really. I want her to be happy and successful and if you complete the race in a wheelchair, you still completed the race which is more than some people can do even able and with a wheelchair.

[–] [email protected] 1 points 1 year ago

What confused her, she says, was that autism tended to be understood as a clearly differentiated condition, largely associated with people who were either non verbal or had very limited speech, and appeared somehow cut off from other individuals. Her daughter, by contrast, was “the most loving, affectionate child you could ever hope to meet”

This was a quote that really spoke ot me. It's why I considered so many options before ASD. I'm very lucky that you basically must test for ASD before the other things I was considering in my area. ASD most certainly wasn't on my radar. My daughter is so cuddly and affectionate after all. She must be ADHD and just in an enternal daydream. That's why she doesn't talk and rarely listens I told myself.

 

Judy Singer is several thousand miles from her Australian home, on a two-week trip around the UK, which includes an onstage interview at Cambridge University and her receipt of an honorary fellowship from Birkbeck, University of London. The neurodiversity movement is a political movement for people who want their human rights. To some extent, what people were discussing online was centred on their own psychologies, but it was also about wider society: the ways that its organisations, institutions and attitudes made many people's lives all but impossible, and how those things could be changed. In the meantime, Singer had decided to write a thesis focused on the online communities she was now part of, and her sense that they were cohering into a new social movement, comparable to those focused on feminism and gay rights. One of the writers involved was Steve Silberman, who contributed a piece titled Neurodiversity Rewires Conventional Thinking About Brains, which began by crediting Singer with the idea's invention. "They said, 'Did you know you've just been cited in Wired magazine?' I thought, 'Oh wow.' Then I contacted Steve, and said, 'That's me.' He said, 'I've been looking for you.' And that was that." Silberman has since paid tribute to Singer by not only telling her story in Neurotribes - which was a bestseller - but paying glowing tribute to her work: "Few can claim to have coined a term that changed the world for the better. Judy Singer can." Singer then watched as neurodiversity began to snowball, including in Australia.

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A child whose parent suffers from anxiety is more likely to develop the disorder, and studies show that genetic changes from experiencing trauma can be passed down to children or grandchildren. While you may dread small talk and happy hours, you probably don't want your child to feel the same way about playdates and parties. This may limit social opportunities for the child, putting them at a disadvantage in terms of building social skills, and potentially passing down social insecurity. Somich says you can enlist the help of a trusted adult to provide your children with healthy exposure to social situations: "This way your child can see that it is possible to feel comfortable and regulated in social environments. You can talk through your fears with your child by saying, "I am feeling anxious right now because I'm not used to flying. If you see your child modeling your own fears, anxieties, and neuroses, Turner says it is never too early to seek professional help. "Just because a parent may struggle with some fears does not automatically mean the child will develop similar fears," Turner says.

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[–] [email protected] 8 points 1 year ago

I thought you guys would find this article interesting. I think the answers are thought provoking for anyone who has any kind of invisible struggle.

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submitted 1 year ago* (last edited 1 year ago) by [email protected] to c/[email protected]
 

cross-posted from: https://discuss.divergentparenting.space/post/29407

Take a moment and imagine that someone calls you disabled. Ask yourself, do you agree or disagree? What feelings come up for you? Based on your lived experiences, like your interactions with family, teachers, doctors, friends, and society more generally, how has your relationship with the concept of disability been shaped?\n > \n > Even though many governmental organizations officially recognize autism as a disability, this doesn’t mean that all autistic individuals identify as being disabled. Members of the autistic community have such varied lived experiences, which contributes to whether we each identify as being disabled or not. Moreover, how we relate to the concept of disability differs as well.

[–] [email protected] 1 points 1 year ago

This was such an interesting read for me. I'm not ND, but I was very physically disabled as an adult and I'm minorly physically disabled now. I also got MS recently to add to the stack. I have nothing but invisible disabilities and it's very annoying. People have a lot of opinions about what I can do and they never match my own. It's hard to own the word disabled when I mostly live a normal life. I'm so very capable compared to most, but I definitely need accomodation that I often have to provide for myself. I definitely connect to my daughter's current and future struggles.

 

Take a moment and imagine that someone calls you disabled. Ask yourself, do you agree or disagree? What feelings come up for you? Based on your lived experiences, like your interactions with family, teachers, doctors, friends, and society more generally, how has your relationship with the concept of disability been shaped?\n > \n > Even though many governmental organizations officially recognize autism as a disability, this doesn’t mean that all autistic individuals identify as being disabled. Members of the autistic community have such varied lived experiences, which contributes to whether we each identify as being disabled or not. Moreover, how we relate to the concept of disability differs as well.

[–] [email protected] 6 points 1 year ago

I thought you guys would enjoy this story about me and my daughter.

[–] [email protected] 3 points 1 year ago

I started my kid on a full sized bed and called it a day. That will be big enough for her to share with a friend and/or cousin until she's an adult and out of my house. She slept wild in it at that age, but she sleeps mostly correctly in it now at 4. although dead in the center. Perhaps by 8 she'll have a favorite side and the answer won't be "why not both" lol

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