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submitted 2 days ago by zlatiah@lemmy.world to c/science@lemmy.world

This is an exclusive report from Science News', jointly organized with Retraction Watch, on a gene editing tragedy.

The tragedy involved two parents paying $860,000 to partially fund an unapproved clinical trial of 1 to save their daughter from a rare neurodevelopmental disease, the work being done by a superstar researcher in China working at a highly prestigious research hospital, the girl subsequently dying because the research behind the trial was shoddy, and the death of the girl being buried. The research behind this was subsequently published in Nature, but the human trial component was completely erased.

This might shape up to be one of the largest gene editing scandals for a while

Try this Wayback Machine link if you are paywalled

There's also a brief follow-up article by Science News

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[-] thebestaquaman@lemmy.world 11 points 1 day ago

Some Chinese institution: lies

Some journalist: Points it out

Chinese government: "Stop spreading these baseless lies about us!"

This guy: "There sure is a lot of Sinophobia around here these days!"

this post was submitted on 24 Jul 2026
169 points (98.8% liked)

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