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this post was submitted on 24 Feb 2026
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Asklemmy
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I hope you don’t. In my case nothing helped so I had my lower intestine removed. The made a facsimile with a section of small intestine and re-plumbed me. It was during that recovery period that I went on TPN to effectively reduce the usage of my digestive system.
TPN is Total Parenteral Nutrition. Basically it’s a large bag of glucose, lipids, vitamins and minerals that is fed through a PICC line (in you upper arm) directly above your heart for thorough dilution and distribution through your bloodstream. An external peristaltic pump doses it into you throughout the day. It’s a trip, albeit cumbersome. Oh, and it does spikeTF out of your blood sugars so you have to take insulin during the process, which sucks.
Did it help?
The surgery did, but it was a long recovery period. I think it was three months with a temporary colostomy bag while my intestine healed and then at least a year for my body to get used to the new setup. After about 5 years I noticed that I was closer to normal, or as normal as you can be after getting a j-pouch. But it’s better than going through continued episodes. I don’t think I would have survived more than a couple additional bouts. Plus living with UC really increases your risk of colorectal cancer. Fun stuff