"For centuries, community builders, social justice engineers and freedom fighters--most of whom are multiply marginalized--have been doing exhausting and traumatizing life-changing & life-saving work with and for no money; with no sleep, health or mental health care; and with no institutional support. Our work is done for advancement not accolades; for freedom, not financing; for liberation, not to be lauded. Our work is not trackable, billable, fungible, settlement negotiable. Our work is invaluable. Our work is deeply rooted in love. I honor you."
- Talila A. Lewis, Fighting for Freedom & the Expense of Erasure
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As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
I've never posted here before, so I'm hoping I'm not breaking any rules or acting in poor etiquette. I'm epileptic and some months back I was hospitalized with severe seizures, ever since then my memory has been utterly shit. It's embarrassing, forgetting basic things at work and around the house. More importantly, I don't feel totally present in my life now. My sense of time, from months to days, is screwed up. Seriously, sitting here, I can't tell you just what month I was hospitalized. A couple months ago or more than half a year ago? I've never had such bad seizures. I feel like it is so taxing on my wife who already has so much to deal with.
I'm not really sure why I'm typing this except that I guess I could use the support or some perspective. I feel such guilt and helplessness lately. My wife, family, and friends deserve better than me being so screwy and needy. But I know if the roles were reversed I'd do anything for them. I just hate feeling so helpless and stupid.
you're more than welcome here!
and yea those are common feelings with anyone who's disabled i think, feeling like a burden. i don't really have insight i just want you to know that you are loved
Thank you, that's very kind. I am definitely loved, I know that for sure.