47
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 30 Jun 2025
47 points (100.0% liked)
disabled
229 readers
17 users here now
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.
Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Follow the Rules:
- This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
- Follow the principles of disability justice, as outlined in the link above.
- Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
- No COVID minimization.
- Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
- If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
- Please CW and spoiler tag discussions of ableism.
- When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
- Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
- Follow the Hexbear Code of Conduct.
Let's kick back and have fun!
founded 8 months ago
MODERATORS
Hey folks. I've never posted in here, so this is a long one. I 'qualify' medically, but I've always been very resistant to self-identifying with my disabilities. I asked my parents to stop posting "I love my autistic child" junk on Facebook back in the day, even though they were well meaning.
I'm strongly aware of how they influenced my past and current behaviors, what overwhelms me and why, and things like that. But the resistance to the identification is still there.
I've had some pretty hard falling out with friends recently in part due to my own overzealous nature when it comes to relatively minor injustices, which is a quirk of my condition. I essentially called them out for all playing a new game that directly funds horse racing/animal cruelty and was given a lecture about how tired they are of virtue signaling in response. As a vegan poster, that was the last straw in a sequence of other events.
So I guess I'm trying to break out if that resistance and see if I would be actually be better off interacting with other ND individuals.
Has anyone else experienced this resistance and have suggestions/readings on how to get over it?
I think it used to come from childhood trauma. That my life till now would have been fine if I just had been born 'normal,' that I wouldn't have to dwell on every awkward interaction, that I wouldn't have been so arrogant in college or caused my parents so much grief, etc. A lot of self blame, regret, and self-isolating to protect myself and feeling others were better off away from me too.
I get that a lot of that now is a societal construction problem, not necessarily an individualized one.
I don't think I feel that way anymore, but I do still get residual feelings in situations like my most recent one, where my own behavior damages my social relationships, at least insofar as the group dynamic is concerned.
I'm not sure where the current feelings stem from if not the same thing.
Tldr; is there a book for people who (previously) hated themselves/their condition and so rejected communities and labels that might have helped?
Alternatively, something to help temper or more effectively harness injustice sensitivity/righteous anger?
Welcome in! I'm gonna try and respond as best I can, please let me know if at any point I'm unclear or come off in a negative way.
On resisting identifying as Neurodivergent
I'll start by sharing that I have told two people outside of Hexbear that I got diagnosed as AuDHD last year, and that I have a fair bit of anxiety when thinking about sharing it openly with everyone I know or may meet. That anxiety comes from the stigma of being labeled and 'othered', which I think a lot of folks here can probably relate to. With the political climate in the US, where I'm at, autism has become increasingly more difficult to speak on because of the misinformation being spread and the anti-science talking points that are pervasive within the general populace and the current administration. One of my favorite websites right now is stimpunks, which I've posted about before in the neurodiverse comm. I think a lot of us were taught to mask and hide our differences growing up because the world has told us our natural behaviors are wrong and meant to be corrected, leaving us resistant to the very things that make us comfortable with ourselves. Fighting that internal stigma can be really, really hard. I am still adjusting to the idea of being ND almost a year after my diagnosis because I've been so heavily masked for so long, but we have such a welcoming and wonderful community here on Hexbear that I've become noticeably more comfortable with my ND tendencies IRL and here on the site. I think it's wonderful that you want to be more openly accepting of yourself!! The Unmasking Autism book by Devon Price was a huge eye-opener for me as to why I felt the way I did and what masking really meant in my daily life. I'd recommend it to anyone wanting to learn more about themselves and others who identify or have been diagnosed as autistic. Their book Unlearning Shame is also another great read (I'm about halfway through it right now). I've struggled with relationships a lot as well, and I found this book on emotional maturity really helped me with understanding some of my emotional baggage and trauma. It's older, and should be taken with a heavy dose of critique, but I think the general messages are sound. I'm sure if you search the ND community for some book recs, there's a few posts with a place for reading lists/videos/articles as well.on relationships
I don't have much in terms of advice for calling people out/virtue signaling. A lot of the time in situations like that I've had to ask myself internally what I expect from the other person if I'm going to say something to them about a certain topic. We all have the slop that we like to consume, whether it's games, food choices, or literature. Everyone deserves a modicum of respect to lives their lives as they want, so long as it's not detrimental you and those around you. If it gets to the point where you're losing respect for the person and their choices, it might be time to truly consider what you're wanting out of that relationship and if it's worth continuing. I wish there were more I could offer, but without more information I feel like I'm making too many assumptions and I don't want to offer up irrelevant blather. I'm open to chat more about it if you want, though.Hopefully that's not too ramble-y, and I hope that answered some of your questions.
I'm a very verbose rambler, so no worries there. I've spoilered my replies too to make it a little less long.
On your recommendations
I appreciate the book recommendations. I'm scrolling through the stimpunks website and it's a lot to take in, but I've already opened a few links to look at later. I did see that they encourage you to just kind of scroll.I've heard of the Unmasking Autism book before. I think I'll start there. I've never really felt like I masked in public, which is part of what leads to awkward or unsatisfactory social interactions. But I'm open to the idea that I don't fully know what all masking encompasses and that it might help to recognize if that is something I have been doing all this time without realizing it. The Unlearning Shame book might help in that regard too. I think I have a tendency to just withdraw socially in reaction to stress so as to avoid future situations entirely.
I think what you've said about being othered is a common sentiment I've come across and felt. I think part of it was to reject the label, excel in spite of my condition (at least in some areas), and 'prove' to people that there was nothing 'wrong' with me. Nobody else I was trying to prove anything to really cared though. In that they're just glad that I'm better off than I was.
I have a long term partner so my relationship there is great. They're very supportive and understanding of the quirks I have. I don't think they quite get why they manifest. But it's kind of impossible to explain to someone what it feels like to be a child with sensory overload and have clothing 'hurt' you to the point that you refuse to wear it. It just doesn't make sense.
On relationships
I understand what you mean regarding respecting people's actions. That's sort of one comment someone made to me during that interaction. I don't know that context to the specific scenario is helpful. It's hard to explain especially if someone is not vegan (I'm just assuming in this case). It's not a direct comparison, and some people probably experience similar circumstances. But suppose that from the moment you wake up to the moment you go to sleep, every billboard, every ad, every label on every object you pick up, every conversation you overhear all reeks of casual racism, sexism, homophobia, transphobia, or whichever form of oppression might apply to you or people you care about. Even FROM those same people. That's kind of as close as I can get to describing the experience of vystopia. It's sort of an inescapable and ever present anguish that is constantly fed. I could compare this particular circumstance to if all your friends were all playing the new Harry Potter game, despite knowing noted transphobe Rowling receives money from every copy. It kind of ruins the vibe of commiserating with that group, since interacting with them brings more stuff like that into your life, rather than being a joyful escape from it.In general, I think that my most commonly presenting trait other than a general shyness, is justice sensitivity. I was diagnosed with oppositional defiant disorder as a child, which if you read now, has been heavily criticized for being racist but also pathologizing a natural resistance to whatever you feel is unjust, not necessarily what is. So this could easily apply to things like going to school, or nap time. But to put it in Hexbear terms, as an adult, I think this essentially manifests as acting like an Appalachian Maoist who is consistently critical of everyone not living up to their expectations. I don't think I'm that obnoxious, but it comes out now and again when I'm just exhausted by the circumstances. Especially now, as you mentioned in the political climate in places like the US. It makes it feel like indifference and inaction are more offensive than they would otherwise be and it's definitely upped my confrontational meter a little bit.
I don't necessarily think I've lost respect or hate the people I am talking about in this scenario, but it feels mutually unbeneficial to continue interacting with them, even after being friends for over a decade. I've done a lot of thinking since that interaction the last week or so and concluded that online-only friendships based primarily on media consumption are not satisfying to me anymore. Not that I think everyone is a mindless consumer, but they want people to relax and play video games with to escape thinking about unfortunate events, and I want people to commiserate and take action with. I am geographically isolated at the moment, contributing to my general unease, but that is changing in the next few months and I hope to join some activist groups in my new location.
Apply that kind of thing to strangers though, and it's difficult to make friends if your hard line is stricter than others. I don't expect everyone to be like me or have the same thoughts or moral or whatever, but I do want to get a sense that they are at least considering these things when making their decisions and take me seriously when I am expressing my feelings about them.
I feel like most people I talk to on Hexbear are in that camp. As long as someone isn't saying something obviously heinous, people are understanding and compassionate and genuine in their interactions. Like you were with your reply. Which is part of why I decided to try posting in this mega in the first place. I've only felt that sense of community once before, in a completely different country, where it felt like people were all working toward a mutual goal and understanding, with everyone supporting each other along the way.
Thank you for your response, I learned a couple of things just from you sharing and I appreciate it! A lot of what you said really resonates with a lot of my own experiences.
just continuing the convo, sharing a little about myself
I tend to do this as well, but moreso once burnout really started to catch up to me several years ago. I didn't even know it was burnout until reading Dr. Price's book and getting diagnosed. It's helped me kind of re-frame a lot of the internalized ableism I'd been carrying around, as well as help me understand a lot about what defines the disorder and how to better adapt to a neurotypical world. If you do get around to reading it I hope it proves beneficial.
I feel this in my soul, comrade. Sensory overload can be so hard to communicate and navigate. I've found that scents, foods, sounds, etc. can cause extreme dysfunction for me if I'm not careful.
My apologies, I was definitely trying to keep it as broad as possible without making too many assumptions, so I appreciate your explanation.
Thank you for sharing this, I wasn't familiar with ODD but I can empathize with a lot of what you shared.
I'm vegan! You taught me a new word, and I have felt this more and more recently the older I get. When I originally made the changes because of health issues, I ended up learning a lot about cooking, the horrors of where our food comes from, and that a lot of my food sensitivities were actually stemming from dairy and meat intolerance. My slop comment was a little harsh. I think I was trying to express my opinion that a lot of people aren't in a place where change is always viable, since we are still subject to a very dystopian capitalist nightmare that we grow accustomed or adjusted to whether we're trying to or not. Like with veganism, I try to remind myself not everyone has the privilege of food security or housing that allows for ingredients or tools to prepare certain foods. I don't disagree with you at all, in fact I relate to a lot of what you shared about feeling surrounded by the constant reminders of everything wrong with the world. It can get exhausting, especially when big emotions and feeling a sense of justice is so common to those on the spectrum. I can't remember where I read it, but I've seen references to people with ASD often displaying a very strong sense of morality with the added benefit of not being swept up into social norms, and that it can cause additional stress if we don't find outlets and means of regulating around it. Organizing seems like a great way to address those feelings though! That and finding others to share experiences with.
It sounds like you've been fair and considerate to your needs as well as those you were interacting with, which is really all you can do, right? I don't think there's anything wrong with wanting something different, or something more from relationships. It's awesome you have a supportive partner, too. Sometimes one person can really make the difference. You deserve a safe space to express yourself and be treated fairly, I hope we can continue to provide that here.
I know it's been a few days, but I wanted to make sure I thanked you for your replies.
I made some assumptions, but I think you probably understand a little better how I feel about that whole situation I was describing. I think that I'm definitely lenient with folks regarding things like veganism and other moral choices, given my partner is vegetarian, and most of my friends are not vegan/vegetarian either. I'm sure some music artists I listen to are horrible people without me even knowing. There's always something. There just comes a line where it feels like I'm not being given the same respect like when a friend was talking to me about what they do with their backyard chickens. To be clear though, my feelings don't matter in the grander context, just this little microcosm of an interaction, and what I really care about are those being harmed.
I started reading Unmasking Autism and I'm still only partway through Chapter 1 because I stopped to do the activity in the intro where they have you reflect on your most fulfilling moments. That took a little while. But so far this conversation and the introduction to that book have been really affirming. I do think I made the right call in ultimately separating myself from that friend group, as painful as it was, and have been able to reflect a little on my own behavior in the process. Not just now, but in the past too.
I plan to continue through it and seeing how much else connects.
Thanks again.
No worries! We all have limited spoons and lives outside.
It definitely always feels like there's layers to everything. It makes things harder to navigate sometimes because it can be so isolating. Even with the small stuff, though, I think those feelings matter so much. It's part of what makes us the beautiful individuals that we are.
Glad you're already getting some positives out of the book, as well. I still go back and re-read parts of it when I'm having a rough time.
Hit me up or pop in the mega whenever you want to chat, we've got a great little community here.