this post was submitted on 02 Jul 2023
9 points (100.0% liked)

chronicpain

315 readers
11 users here now

For the broken, malfunctioning, pained people of the world and their friends/family. Got pain? This is the place to be.

PARTNERED COMMUNITIES

Neurodegenerative Disease Support

Mental Health

TMJ

Fibromyalgia

You Should Know

founded 1 year ago
MODERATORS
 

We all live with an acceptable amount of pain since we have no choice.

What do you rate your every day pain?

If someone swapped bodies with you, what would THEY rate that pain?

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 4 points 1 year ago (1 children)

There's a 'community-driven nonprofit' that all of us put together and run called The FD/MAS Alliance

We all raise any money that we can and funnel it into genetic research to find a cure for this monstrously life altering condition.

Being able to pool our money like that and apply for grants allows us to hire doctors and labs to look for a cure. Fingers crossed with CRiSPR!

[–] [email protected] 2 points 1 year ago

Good to know! That’s for sharing

Crispr is some insane engineering and will and is changing the medical field everyday. I really hope they find something for you!