this post was submitted on 02 Jul 2023
9 points (100.0% liked)
chronicpain
315 readers
11 users here now
For the broken, malfunctioning, pained people of the world and their friends/family. Got pain? This is the place to be.
PARTNERED COMMUNITIES
Neurodegenerative Disease Support
founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
There's a 'community-driven nonprofit' that all of us put together and run called The FD/MAS Alliance
We all raise any money that we can and funnel it into genetic research to find a cure for this monstrously life altering condition.
Being able to pool our money like that and apply for grants allows us to hire doctors and labs to look for a cure. Fingers crossed with CRiSPR!
Good to know! That’s for sharing
Crispr is some insane engineering and will and is changing the medical field everyday. I really hope they find something for you!