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Long Fatigue: The exhaustion that lingers after an infection (www.bbc.com)

submitted 1 month ago* (last edited 1 month ago) by [email protected] to c/[email protected]

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Summary

Post-viral fatigue,* a mysterious illness linked to infections such as Epstein-Barr, Ebola, and Lyme disease, has long been poorly understood.

Scientists are now investigating its underlying causes, including mitochondrial dysfunction, inflammation, and autoimmunity, while exploring potential treatments like enzyme supplements and repurposed medications.

Current studies are focusing on repurposed HIV drugs, enzyme therapies, and supplements such as Coenzyme Q10.

Identifying at-risk subgroups and uncovering the mechanisms behind fatigue could produce targeted clinical trials and new treatments within the next 1-2 years.

EDIT:

*Should be post-acute infection syndrome or myalgic encephalomyelitis instead (thanks @[email protected])

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[–] [email protected] 2 points 1 month ago (1 children)

"Fatigue" is something healthy people experience too.

The amount of time I spend explaining that when someone has a symptom of ADHD, it isn't the same as what "everyone" has been dealing with, and it's extremely difficult to overcome.

It's a frequent occurrence in any ADHD space I occupy where outsiders will come in and accuse us of making a symptom out of "normal" behavior, or accuse us of "confusing" a symptom for the symptoms of something else.

I recently locked myself out of my house in the evening after my medicine had worn off. "Well, everyone does that sometimes!" Does everyone do it three times this year, incurring considerable embarrassment because you have to inconvenience someone with a spare key? Does everyone rack up considerable cost on the occasions when they couldn't wait for help to come and had to call a locksmith?

Sorry, I didn't mean to make this about me. I meant to call attention to the problem we seem to have as a society where random people diminish the severity of what someone is suffering for no real reason.

[–] [email protected] 5 points 1 month ago* (last edited 1 month ago)

I totally get it, healthy people love trying to relate, but sometimes it can negate our experiences.

“I’m tired too”

“I’m in pain too”

“I’m [x] too”

like I don’t think these comments healthy people make come from bad places, but they often dont really understand our problems tend to be orders of magnitude more severe than the “common meaning” of the word, because they have never experienced it. I mean I would assume the same before I got my illness.