Hello it's me. So I got diagnosed with autism as a kid, around 15 years old, but my parents didn't seem to like the diagnosis so I never got any treatment or anything. So I go about my adult life with the background assumption I have autism.

Flash forward to today, my employer changes healthcare plans and suddenly I have psychiatric care coverage for the first time ever as an adult. I've been dealing with some stuff so I book a few appointments with the assumption I have autism. We'll long story short, over a few sessions the doctors have me screened and determine it's very unlikely I'm autistic in a medical sesne, which was kinda shocking to me.

But they tell me stuff like autism diagnoses have become better since I was a kid, so that calms me down. They tell me it's far more likely I exhibit what's called schizoid personality disorder (SPD) , which often seems like autism on the surface. I guess it explains a lot.

Anyone have experience with this?

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[–] 18 points 5 days ago

I'm glad you have access to care and I hope it's useful to you!

I had a somewhat opposite experience. I was diagnosed with bipolar in my 20s (type II, rapid cycling). After 2 years of trying to find a medication combo that worked for me, my doctor recommended me to an intensive day program. I went for the intake assessment and they were like, "Um, you aren't bipolar." Okay? Anyways, I stopped meds (with doctors blessing) and went on with my life.

I got diagnosed with autism in my 40s and suddenly it makes a lot more sense.

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  • [–] 16 points 4 days ago (1 child)

    My official diagnosis is schizoaffective (after thinking on it for a few years, I really think psychotic bipolar would be a better way to describe it), although I know many schizoid people.

    Personally, still think you should tell people you're autistic. Something psychs (I genuinely hate psychs, the pharmacists are usually more qualified) don't understand is that there's quite a bit of acceptance with more minor mental health diagnosis nowadays. I'm able to ask for reasonable accommodations without doctor's notes for autism and other issues usually. Now to be fair, the accommodations I ask for at work are pretty simple - if I'm on an early morning shift, call me a couple hours ahead of time to make sure I'm awake. Not getting tilted over me regularly being 5 minutes late because of time blindness. But the point is, it's a lot more socially acceptable to say it's autism or ADHD than anything else.

    Now to be fair, I am usually the most competent employee at my job, and I'm also in food service so neurodivergence is quite common in back of house. I left fine dining and now I work at a pizza restaurant, I am extremely overqualified for my current position and it frequently shows.

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  • [–] 14 points 4 days ago

    Some of the things in the thread sound just like me, and I actually started going through a full neuropsych eval this week. Will report back if I get told anything similar!

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  • [–] 9 points 4 days ago (2 children)

    Anyone have experience with this

    With me, not quite the same, but there are a lot of similarities, hopefully enough to warrant this comment. Like I also assumed I had mild autism for a long time. My mom before passing even told me that when I was a little kid she was fully convinced I was autistic because of how hypersensitive I was to everything, but she only told me this when I was around 20. For a while, only partly because of what she told me, I thought I was probably on the spectrum. But then I discounted it. See, I would like to think I'm a rather empathetic person, I did back then too, but at that time I also mistakenly believed due to bad stereotypes that empathy ruled out autism.

    Fastforward to only a few years ago and suddently, like you, I happened to luck into some real mental health care at last. That's when I got diagnosed with Avoidant Personality Disorder, AvPD. I've spoken to a few other comrades here who also have AvPD and that did help me feel a bit less alone with it, but because of it, I really am a hermit now. Which I hate to admit as a communist. I wasn't always though, and I keep hoping maybe one day I won't be again, but having a personality disorder means it's really fucking hard.

    If you don't mind me asking, how are you feeling about the diagnosis? I had a lot of mixed feelings about mine. I hope you're doing well with it, comrade. Solidarity. heart-sickle

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  • [–] [S] 6 points 4 days ago (1 child)

    I think I'm feeling fine, it's just a surprise since I had trusted the diagnosis I got as a kid for so long. It also bent me out of shape back then because I remember after getting the diagnosis, my parents completely shut down about the topic and never got me treatment or anything afterwards.

    I actually have also had a doctor mention I possibly had AvPD but I guess there's so much crossover with this stuff sometimes (I say as a lay person)

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  • [–] 3 points 4 days ago

    so much crossover with this stuff sometimes (I say as a lay person)

    ::: spoiler (I am not educated take what I say with salt)

    I watched some lectures on diagnosis processes, and specifically around personality disorders. The lecturer was adamant (tho I'm not qualified to say whether that adamance was appropriate, but they made good points to my uneducated eyes) that personality disorders should be diagnosed using a vectored approach, instead of the discrete approach used in the DSM today. I.e. rather than just "you have this PD" instead making it "you hav a PD, with these specific characteristics". This is cause if you qualify for one PD you probably qualify for another as well, or maybe more. And with a vectored approach it places the focus on the symptoms/intensity and experiences you specifically have, instead of focusing the PD and all of its associated symptoms together.

    Idk, I'm not a neuropsych, but I thought it might be worth mentioning, cause like, idk, to my eyes it doesnt matter what they call it, what is is and thats what has to be contended with, not a specific label. Labels can be useful, but they can also be confining and lead to bad treatment.

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  • [–] 6 points 4 days ago (1 child)

    my half brother has the paranoid version

    wouldnt wish it on anyone

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  • [–] 6 points 4 days ago (4 children)

    If you don’t mind me asking, did they say why they believe schizoid personality disorder is more likely than autism? I have strongly considered me being schizoid, schizotypal, or autistic but haven’t really had any kind of evaluation besides being diagnosed as having ADHD

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  • [–] 4 points 4 days ago

    I'm not an autism scientist (yet) but I guess one thing you can look at is if you have any weird persistant sensory issues. Do you have strong negative reactions to certain textures, sounds, smells, bright colors? How do you handle loud and crowded rooms? Do you have some weird problems with your hearing? Do you avoid certain foods due to how they feel? Sensory issues is one of the core pillars of autism.

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  • [–] [S] 1 point 4 days ago (2 children)

    My symptoms weren't present in early childhood, I lack sensory issues, I'm able to understand subtle social cues, I don't have any of the motor issues. When I started talking with the autism specialist it became obvious really quick since it was a pretty thorough examination. I was told that autism can present itself in different ways, sometimes taking months to reach a diagnosis, however I apparently lack many of the major immediate symptoms that would often get caught as early as 5 or 6 years old.

    Schizoid personality disorder, however, doesn't usually start to present until later childhood, after puberty, which makes a lot of sense because that's exactly when my parents started getting worried about my behavior and sent me to a therapist in the first place. SPD isn't well researched and can seem similar to autism. Plus I was 15 quite a while ago so maybe diagnosis methods have improved since then.

    My parents initially sent me to a therapist because I was a bit of a delinquent with no friends. I also wouldn't do homework and I'd isolate myself, reading books and playing video games. Schizoid personality disorder is an odd because it usually goes completely untreated because people who have it rarely see a problem. They like being alone.

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  • [–] 2 points 4 days ago

    This all sounds like me, except for the worried parents sending you to a therapist, and all I got diagnosed with is Depression/Anxiety and then ADHD.

    I'm not interested in a potential autism diagnosis but my partner with one is convinced I have it. They were also diagnosed with Bipolar and then Borderline Personality Disorder, before someone realized it was actually just Autism.

    I'm extremely skeptical of personality disorder diagnoses now, after having seen how often people with autism get initially diagnosed with a personality disorder, and the crazy gender disparity in diagnosis. Women have historically been waaaay underdiagnosed with autism.

    A diagnosis is only as useful as the treatment is helpful, so take it with a grain of salt.

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  • [–] 7 points 5 days ago

    I am schizophrenic. But I am highly functional.

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  • [–] 6 points 5 days ago*

    My brother has what we suspected could be SPD. But he's quite different from you, he wouldn't make posts on Lemmy, because he doesn't read or use the internet much. It's not that he doesn't have a personality at all, but he doesn't have any hobbies or personal preferences or opinions on anything and spends hours sitting around doing nothing/thinking. He doesn't do anything out of his own initiative. When he does speak he's quite insecure and shy. One thing he does have though is that he's very observant and can remember things very well and in much more detail than the rest of us.

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  • [–] 3 points 4 days ago

    Yup I either have Major Depressive Disorder with Generalized Anxiety Disorder or Schizoid Personality Disorder. The good news is they're all treated the same way, even medications. It only matters so far as determining causes.

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