this post was submitted on 31 Jul 2023
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So I have phenylketonuria, and a big part of this is being in tune with my brain and my mental/emotional/physical well-being as to try and gauge when my phenylalanine levels are high.
Since I’ve had my phenylalanine levels so low, I was able to correctly find out my levels were high.
As to catastrophising, unfortunately that is a symptom of high phe levels. I’ve been working on lowering my phe levels, and today was the first day I didn’t feel any anxiety or catastrophe despite starting something 24h support at work today for a week.