It’s terrible and scary. I’ve had simple partials.

Freeze. Drop. Lucid but body isn’t. Puke. Try to eat crackers. Sleeeeep.

Klonopin has been a life saver for me. Even when I’ve forgotten my 600mg daily lamictal dose or doses, I haven’t had any problems.

What meds worked for you?

Take care!

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[–] 2 points 4 days ago (2 children)

Just got slapped with a suspected epilepsy diagnosis last month, but that's what the epileptologist and EEG tech said I likely have. Only other option being considered is "really weird migraines" but the neuro said that's a big stretch. Likely insula and temporal lobe involvement based on symptoms.

My focal awares are either feeling like I'm suffocating while hallucinating profoundly nostalgic indescribable smells, or feeling like a silent gong went off in my head followed by intense deja vu/jamais vu. The impaired awareness one I had back in May was receptive aphasia - inability to reality check - blurry vision - loss of time (staring and fidgeting with my hair) - expressive aphasia - confusion. I've had a handful of others like the one where experienced time in slow motion, but the weirdest by far was religious ecstasy.

Thankfully the impaired awareness seizures are years apart. The focal awares happen about once a week. Both types were written off as silent migraines by previous neuros.

They started me on generic Keppra (500 mg twice a day) after my appointment last month. I've felt a few start but they didn't progress. These blips lasted less than five seconds, way down from the usual minute. So I can't speak to long term effectiveness. Keppra seriously nerfed my energy levels though, only in the past few days am I starting to feel like a person again.

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  • [–] [S] 2 points 4 days ago (1 child)

    I am so glad it worked out for you. Positive vibes and keep it up ok. Stay strong.

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  • [–] 2 points 4 days ago

    Same to you 🙏

    I hope this community grows because they're difficult to talk about with people who don't experience them. I joked to someone that mine are like I'm smelling something from another dimension and they looked horrified lol. Or they think we all react to flashing lights and seizures are only when you convulse on the ground.

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